Forgetting….

When I open up to people about my Parkinson’s – which I often do early on – one of the first things they tend to say is that I don’t look like someone with Parkinson’s. They also say that they don’t notice any issues with standing, walking or tremors. All of the above is true.Continue reading “Forgetting….”

Priorities – What do you focus on?

Yesterday a short video clip showed up on a Facebook Page for people with Parkinson’s and those that support them. It was a video of a husband whose wife had been diagnosed some 20 years ago and how he had spent those 20 years. He talked about how he had spent a significant amount ofContinue reading “Priorities – What do you focus on?”

Parkinson’s and work and living with Parkinson’s

I had the privilege a couple of days ago to interview for my podcast “Parkies Patter – a chat about all things Parkinson’s” a lovely couple called David and Clare. David is the person with the condition and has some challenges with his speech, but was able to contribute as and when he was able.Continue reading “Parkinson’s and work and living with Parkinson’s”

Forgetting words – is helping, helping? Or is it hindering?

This is probably a hard one to comment on for most of us. I know there are times when I am trying to tell my husband something and I lose the word, or the direction I was heading in. I often sit and shake my head and say that I have no idea what theContinue reading “Forgetting words – is helping, helping? Or is it hindering?”

Pride goes before a fall… What does that even mean?!?

The saying “Pride goes before a fall” is such a negative outlook on life as far as I am concerned. Giving it this sort of negative attention baffles me. How many times in my life have I felt pride? Pride for something I have done? Something my children have done or my husband? or anyContinue reading “Pride goes before a fall… What does that even mean?!?”

Have you seen/heard my podcasts?

You might be interested in some of my earlier podcasts on “My Journey with Parkinson’s” and my most recent venture which is interviewing people with Parkinson’s and their partners about what Parkinson’s means for them. I will add some links below, if you would like to have a look. Just a sampling of the contentContinue reading “Have you seen/heard my podcasts?”

“By eck, by gum would you Adam and Eve it!”

Pretty random huh! I have been thinking today about the difference our culture can make for us. Also, about the definition of culture. Often culture is seen as part of your ethnicity and that can be true. But, it is also about the experiences and influences that you grew up with and your family culture.Continue reading ““By eck, by gum would you Adam and Eve it!””

An interview with Clair and David

As well as this blog, I also produce two podcasts. One is “My journey with Parkinson’s” and the other “Parkies Patter – a chat about all things Parkinson’s”. The first podcast is similar to this blog, but with more detail and information included. There are a number of topics explored in the podcast and itContinue reading “An interview with Clair and David”

Parkinson’s is it hereditary and would I want to find out?

I was reading a post on a Facebook page that I follow for people affected by Parkinson’s and the writer questioned whether Parkinson’s was hereditary. Having had both my parents diagnosed with Parkinson’s, it seems that there must be an element of genetics involved. But, I am not a researcher or a scientist and IContinue reading “Parkinson’s is it hereditary and would I want to find out?”

Moving to the beat of my own drum…

I have never really felt that I fully conformed to the image of me that others had. As the youngest child in the family and the only girl with three big brothers, I started out as the odd one out I suppose. I remember being a teenager and my Mum saying to me one dayContinue reading “Moving to the beat of my own drum…”