So today I was reminded to count my blessings. , The title of this podcast is Feeling Lucky to Have Parkinson’s, and that is, no doubt going to seem like a weird thing to, to say to actually celebrate having Parkinson’s. But I’ll tell you what happened today. So my husband and I decidedContinue reading “Feeling lucky to have Parkinson’s”
Category Archives: podcast
Presents vs Presence
So another year is over and a new year begins. Christmas is the season where we gather together with friends and loved ones, if we are lucky enough to have them, and often gifts are exchanged. Receiving a present is always fun, but sometimes we would wish for more of those we love to beContinue reading “Presents vs Presence”
“Please help desk person” A poem
I haven’t written a new poem for a while, but tonight I was inspired to write this one about trying to get a help desk person to help me. I obviously use a computer regularly and am reasonably good at understanding most things, but tonight I wasn’t able to work things out for myself andContinue reading ““Please help desk person” A poem”
Seeking the positive…
A diagnosis of Parkinson’s may be difficult to put in a positive light, but it is something that I try to do as much as possible. The diagnosis has spurred me on to make the most of life and not to just cruise along doing the same old things. I have made a concerted effortContinue reading “Seeking the positive…”
Changing attitudes and priorities…
I have certainly lived a variety of wide and vivid lives over the years. I have morphed into various versions of myself, sometimes knowingly and willingly, sometimes moulded and controlled versions. The 18-20 year old young woman who married at 18 and had their first child at 20 started out – even though I hadContinue reading “Changing attitudes and priorities…”
Is Christmas still the same or different?
Here we are on 22/12/25 in the countdown to Christmas. Three days to go for children and grandchildren to be excited for a visit from Santa. Three days to prepare all the things that need to be prepared for things – hopefully – to go smoothly on the day. This year though, for us itContinue reading “Is Christmas still the same or different?”
Forgetting….
When I open up to people about my Parkinson’s – which I often do early on – one of the first things they tend to say is that I don’t look like someone with Parkinson’s. They also say that they don’t notice any issues with standing, walking or tremors. All of the above is true.Continue reading “Forgetting….”
Priorities – What do you focus on?
Yesterday a short video clip showed up on a Facebook Page for people with Parkinson’s and those that support them. It was a video of a husband whose wife had been diagnosed some 20 years ago and how he had spent those 20 years. He talked about how he had spent a significant amount ofContinue reading “Priorities – What do you focus on?”
Parkinson’s and work and living with Parkinson’s
I had the privilege a couple of days ago to interview for my podcast “Parkies Patter – a chat about all things Parkinson’s” a lovely couple called David and Clare. David is the person with the condition and has some challenges with his speech, but was able to contribute as and when he was able.Continue reading “Parkinson’s and work and living with Parkinson’s”
Forgetting words – is helping, helping? Or is it hindering?
This is probably a hard one to comment on for most of us. I know there are times when I am trying to tell my husband something and I lose the word, or the direction I was heading in. I often sit and shake my head and say that I have no idea what theContinue reading “Forgetting words – is helping, helping? Or is it hindering?”
My journey with Parkinsons 