“So you’ve got Parkinson’s” – some thoughts and a poem

So you’ve got Parkinson’s. Does that mean that everything else in your life must take a back seat and let this beast of a condition take over? No way, I say!

Parkinson’s is like the freebee you get with something you wanted to buy. You take it, cos maybe you feel you ought to, but you probably have no use for it and it just adds to the clutter in your life. Don’t let Parkinson’s clutter up your life. Relegate it to a dim dark corner that you hardly visit.

My life is so much more than a condition that has invaded the darkest corners of my life, but that’s where it should be. In the shadows, out of the light that might make it grow. I attend to it when I must. When medications are due, I attend to it. When I get tired and need to sit down, I do. When my mouth gets dry and my speech is breathless, I attend to these things. I put gel in my mouth to moisten it – proper mouth gel by the way, not hair gel! I pause and catch my breath and maybe take two tries at getting a whole sentence out.

Those of you who are new or newish have not had the pleasure (?!?) at least I hope it’s a pleasure, of hearing or reading my poetry. I write a lot of poetry and more than ever since being diagnosed. Did you know that Parkinson’s can enhance existing creative skills. Maybe now is time to start that band you always wanted? To go to open mike night and recite some poetry, tell some jokes, sing… You might surprise yourself!

So, without further ado here is the link to my poem. I’ll add the words in another post.

Published by kiwipommysue

I am a retired Social Worker having retired in May 2024. I had been a Social Worker for over 20 years and for the sake of my health and wellbeing I chose to retire early. I have some literary projects underway and am enjoying the freedom of no longer working. Working on my projects at my own pace and enjoying my new hobby of lawn bowls is a wonderful thing. No regrets and a new kind of busy in retirement is wonderful.

One thought on ““So you’ve got Parkinson’s” – some thoughts and a poem

  1. I was diagnosed Jan 2025 but had symptoms one year prior. I have left side tremors, rigidity, some dystonia in my toes and bradykinesia (all mild so far) but I still feel great and am able to go about my day without being on any medication. I try to exercise every day as well. I personally want to steer clear of any medication for as long as I can due to the fact that long term use of carbidopa-levodopa is commonly associated with side effects. I could fall asleep but can’t stay asleep. I wake up between 3 and 4 am every night. I used different supplements like Macuna and high doze B12 that didn’t work, so last July, i tried the PD-5 protocol—the best decision ever! My tremors eased, my strength returned, and I sleep soundly for 8 hours. I feel like a new woman, and I can walk and exercise again. We got the PD-5 Protocol from this website ww w. limitlessnaturalwellness. com or google ww w. limitlessnaturalwellness .com

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