I have been going to a Peer Support Group for about 5 years now. We meet once a month at a local club for a drink, dinner and a chat. Sometimes we share about our Parkinson’s, but often we connect over talking about holidays or work or any number of things that a gathering suchContinue reading “You don’t look like you have Parkinson’s….”
Tag Archives: Parkinson's
Reimagining my present and future…
As I am sure many of us do, I have been very guilty of harking back to what my husband and I used to do together. Walking in the Port Hills, here in Christchurch was a favourite and we could walk for 4-6 hours sometimes, with a break for lunch to admire the gorgeous views.Continue reading “Reimagining my present and future…”
Ages and stages through the ages…. communication
I was talking today to someone about how things have changed in the world since we were younger. We had ‘landlines’ as they are called now, but to us they were just the phone. They were also attached to the house by a cord. Later cordless phones came out and those of us who wereContinue reading “Ages and stages through the ages…. communication”
Life is like a game of bowls….
I have just returned home from playing outdoor bowls for the afternoon. I always enjoy Saturday afternoon as it is a laid back ‘roll-up’ with no pressure or prizes. At the moment it is Winter Bowls where we pay an amount for the Winter season until the Summer Bowls start. Either that or $5, asContinue reading “Life is like a game of bowls….”
Travelling and listening to my body…
At the moment, my husband and I are in the UK, specifically in Wales in a place called Betsw-y-coed. It is a beautiful place and popular with tourists. The reason we are here in particular is that we are catching up with some friends that my husband made through some walking holidays. When I sayContinue reading “Travelling and listening to my body…”
Repurposing and finding purpose
The photos are of a couple of things that I have repurposed in my garden. Sure, they will rust or decay at some point, but in the meantime, they are a quirky and unique thing in my garden. Rather like the quirky and unique me, that repurposed them to be something that makes me smileContinue reading “Repurposing and finding purpose”
Famous people with Parkinson’s…
There are many well-known people with Parkinson’s out there in the world. It chooses the special ones, I say. There are those who have risen to fame in other spheres where they are known as actors, singers or other claims to fame. When you hear the name Michael J Fox, is it Parkinson’s that mostContinue reading “Famous people with Parkinson’s…”
“So you’ve got Parkinson’s the poem….”
So you’ve got Parkinson’sSo you’ve got Parkinson’s what does it meanAre you the person that you’ve always been?So you’ve got Parkinson’s who do you tellOnly those closest who know you so well?So you’ve got Parkinson’s what have you leftHave dreams all been lost and so you’re bereft?So you’ve got Parkinson’s a specialist saidWhat are youContinue reading ““So you’ve got Parkinson’s the poem….””
“So you’ve got Parkinson’s” – some thoughts and a poem
So you’ve got Parkinson’s. Does that mean that everything else in your life must take a back seat and let this beast of a condition take over? No way, I say! Parkinson’s is like the freebee you get with something you wanted to buy. You take it, cos maybe you feel you ought to, butContinue reading ““So you’ve got Parkinson’s” – some thoughts and a poem”
Do I want to know or do I not?
It sometimes seems to me when you have a ‘condition’ – I refuse to think of myself as ‘diseased’ – that reference to that condition crops up everywhere. Of course with social media being what it is and clever little algorithms (or whatever) stalk you and this affects what comes into your feed. While IContinue reading “Do I want to know or do I not?”
My journey with Parkinsons 