Getting organised

OMG. Technology! Talk about trying to be organised! Tried to get AI to group these photos was a bit of a nightmare. These are some of the things I use to try and organise my life. The pill box is handy as it has separate compartments to keep the meds together in the right place.Continue reading “Getting organised”

Your unique Parkinson’s story… your chance to be heard!

I have always been a talker. It is no surprise to people who know me that I used to get into trouble at school for talking too much! Words are wonderful and I have always been told that I have a way with words. These days I put many of my thoughts and feelings intoContinue reading “Your unique Parkinson’s story… your chance to be heard!”

I’m not deaf, just overloaded!

One of the most challenging things about having Parkinson’s is that many people – well, I would say most – have no real concept about what Parkinson’s is. It is seen as being primarily affecting a person by giving them ‘the shakes’ and also commonly, difficulty walking with a shuffling gait. If you don’t haveContinue reading “I’m not deaf, just overloaded!”

You don’t look like you have Parkinson’s….

I have been going to a Peer Support Group for about 5 years now. We meet once a month at a local club for a drink, dinner and a chat. Sometimes we share about our Parkinson’s, but often we connect over talking about holidays or work or any number of things that a gathering suchContinue reading “You don’t look like you have Parkinson’s….”

Reimagining my present and future…

As I am sure many of us do, I have been very guilty of harking back to what my husband and I used to do together. Walking in the Port Hills, here in Christchurch was a favourite and we could walk for 4-6 hours sometimes, with a break for lunch to admire the gorgeous views.Continue reading “Reimagining my present and future…”

Ages and stages through the ages…. communication

I was talking today to someone about how things have changed in the world since we were younger. We had ‘landlines’ as they are called now, but to us they were just the phone. They were also attached to the house by a cord. Later cordless phones came out and those of us who wereContinue reading “Ages and stages through the ages…. communication”

Life is like a game of bowls….

I have just returned home from playing outdoor bowls for the afternoon. I always enjoy Saturday afternoon as it is a laid back ‘roll-up’ with no pressure or prizes. At the moment it is Winter Bowls where we pay an amount for the Winter season until the Summer Bowls start. Either that or $5, asContinue reading “Life is like a game of bowls….”

Travelling and listening to my body…

At the moment, my husband and I are in the UK, specifically in Wales in a place called Betsw-y-coed. It is a beautiful place and popular with tourists. The reason we are here in particular is that we are catching up with some friends that my husband made through some walking holidays. When I sayContinue reading “Travelling and listening to my body…”

Repurposing and finding purpose

The photos are of a couple of things that I have repurposed in my garden. Sure, they will rust or decay at some point, but in the meantime, they are a quirky and unique thing in my garden. Rather like the quirky and unique me, that repurposed them to be something that makes me smileContinue reading “Repurposing and finding purpose”

Famous people with Parkinson’s…

There are many well-known people with Parkinson’s out there in the world. It chooses the special ones, I say. There are those who have risen to fame in other spheres where they are known as actors, singers or other claims to fame. When you hear the name Michael J Fox, is it Parkinson’s that mostContinue reading “Famous people with Parkinson’s…”