Getting organised

OMG. Technology! Talk about trying to be organised! Tried to get AI to group these photos was a bit of a nightmare. These are some of the things I use to try and organise my life. The pill box is handy as it has separate compartments to keep the meds together in the right place.Continue reading “Getting organised”

Your unique Parkinson’s story… your chance to be heard!

I have always been a talker. It is no surprise to people who know me that I used to get into trouble at school for talking too much! Words are wonderful and I have always been told that I have a way with words. These days I put many of my thoughts and feelings intoContinue reading “Your unique Parkinson’s story… your chance to be heard!”

Remember me? Parkinson’s gave me a poke yesterday…

What I am about to say, is not in the way of bragging but just my reality. It will be 6 years this year on 15/12/26 that I was diagnosed with this pest of a Parkinson’s. I am fortunate that I am what our local Parkinson’s nurse calls, ‘a slow burner’ In other words Parkinson’sContinue reading “Remember me? Parkinson’s gave me a poke yesterday…”

Hidden symptoms…

As I often do, I was reading some posts by others with Parkinson’s and the topic of ‘hidden symptoms’ came up. I know I have spoken about this before, but it is certainly worth a mention and is likely to be a thread woven throughout my story. Often the first time someone might recognise thereContinue reading “Hidden symptoms…”

Some thoughts about exercise

I follow a few different Facebook groups where people share their journey and their wisdom about what works for them. The ways that people manage their Parkinson’s is as varied as we are individuals. Of course, I suppose a person’s natural inclination towards exercising or not is likely to influence how they view exercise inContinue reading “Some thoughts about exercise”

I’m not deaf, just overloaded!

One of the most challenging things about having Parkinson’s is that many people – well, I would say most – have no real concept about what Parkinson’s is. It is seen as being primarily affecting a person by giving them ‘the shakes’ and also commonly, difficulty walking with a shuffling gait. If you don’t haveContinue reading “I’m not deaf, just overloaded!”

What lies hidden?

This week, myself and two of my friends had an unfortunate event occur, where a person became verbally abusive and angry towards us, but more personally with my friend ‘M’. I won’t go into all the ‘ins and outs’ but suffice it to say that the person concerned showed a level of anger and aggressionContinue reading “What lies hidden?”

When did I get old?

Sitting here this morning, up early because I couldn’t sleep. Scrolling through Facebook and came upon a mash up of dance clips of John Travolta from the 70’s. Born in 1961, my teenage years were very much in the 70’s and I remember watching the movies starring John Travolta. He was quite a dancer! IContinue reading “When did I get old?”