You don’t look like you have Parkinson’s….

I have been going to a Peer Support Group for about 5 years now. We meet once a month at a local club for a drink, dinner and a chat. Sometimes we share about our Parkinson’s, but often we connect over talking about holidays or work or any number of things that a gathering suchContinue reading “You don’t look like you have Parkinson’s….”

Reimagining my present and future…

As I am sure many of us do, I have been very guilty of harking back to what my husband and I used to do together. Walking in the Port Hills, here in Christchurch was a favourite and we could walk for 4-6 hours sometimes, with a break for lunch to admire the gorgeous views.Continue reading “Reimagining my present and future…”

Life is like a game of bowls….

I have just returned home from playing outdoor bowls for the afternoon. I always enjoy Saturday afternoon as it is a laid back ‘roll-up’ with no pressure or prizes. At the moment it is Winter Bowls where we pay an amount for the Winter season until the Summer Bowls start. Either that or $5, asContinue reading “Life is like a game of bowls….”

Travelling and listening to my body…

At the moment, my husband and I are in the UK, specifically in Wales in a place called Betsw-y-coed. It is a beautiful place and popular with tourists. The reason we are here in particular is that we are catching up with some friends that my husband made through some walking holidays. When I sayContinue reading “Travelling and listening to my body…”

Repurposing and finding purpose

The photos are of a couple of things that I have repurposed in my garden. Sure, they will rust or decay at some point, but in the meantime, they are a quirky and unique thing in my garden. Rather like the quirky and unique me, that repurposed them to be something that makes me smileContinue reading “Repurposing and finding purpose”

Famous people with Parkinson’s…

There are many well-known people with Parkinson’s out there in the world. It chooses the special ones, I say. There are those who have risen to fame in other spheres where they are known as actors, singers or other claims to fame. When you hear the name Michael J Fox, is it Parkinson’s that mostContinue reading “Famous people with Parkinson’s…”

Things are going swimmingly…

For several months now, perhaps even up to a year, I have been getting up early in the morning and heading to the local pool at 6.00am. Three days a week, I turn up at the Aquatic Centre with an ever expanding array of accoutrements. When I first started going to the pool I usedContinue reading “Things are going swimmingly…”

It is better to know

Today I was watching one of the series I follow on Netflix. I don’t know what I would do without Netflix and other streaming services, especially when I have been recovering from one of yet another surgeries. When you are immobile or have limited and painful mobility, any distraction that doesn’t hurt is invaluable! Anyway,Continue reading “It is better to know”

“So you’ve got Parkinson’s the poem….”

So you’ve got Parkinson’sSo you’ve got Parkinson’s what does it meanAre you the person that you’ve always been?So you’ve got Parkinson’s who do you tellOnly those closest who know you so well?So you’ve got Parkinson’s what have you leftHave dreams all been lost and so you’re bereft?So you’ve got Parkinson’s a specialist saidWhat are youContinue reading ““So you’ve got Parkinson’s the poem….””

Recovery or regression?

At the moment I am away for a few days with my husband. After four years of pain both from my knee and my back it is sometimes difficult to figure out what causes each new bout of pain. We were going for a gentle bush walk and I was feeling very tired right fromContinue reading “Recovery or regression?”