Your unique Parkinson’s story… your chance to be heard!

I have always been a talker. It is no surprise to people who know me that I used to get into trouble at school for talking too much! Words are wonderful and I have always been told that I have a way with words. These days I put many of my thoughts and feelings intoContinue reading “Your unique Parkinson’s story… your chance to be heard!”

Remember me? Parkinson’s gave me a poke yesterday…

What I am about to say, is not in the way of bragging but just my reality. It will be 6 years this year on 15/12/26 that I was diagnosed with this pest of a Parkinson’s. I am fortunate that I am what our local Parkinson’s nurse calls, ‘a slow burner’ In other words Parkinson’sContinue reading “Remember me? Parkinson’s gave me a poke yesterday…”

Some thoughts about exercise

I follow a few different Facebook groups where people share their journey and their wisdom about what works for them. The ways that people manage their Parkinson’s is as varied as we are individuals. Of course, I suppose a person’s natural inclination towards exercising or not is likely to influence how they view exercise inContinue reading “Some thoughts about exercise”

I’m not deaf, just overloaded!

One of the most challenging things about having Parkinson’s is that many people – well, I would say most – have no real concept about what Parkinson’s is. It is seen as being primarily affecting a person by giving them ‘the shakes’ and also commonly, difficulty walking with a shuffling gait. If you don’t haveContinue reading “I’m not deaf, just overloaded!”

You don’t look like you have Parkinson’s….

I have been going to a Peer Support Group for about 5 years now. We meet once a month at a local club for a drink, dinner and a chat. Sometimes we share about our Parkinson’s, but often we connect over talking about holidays or work or any number of things that a gathering suchContinue reading “You don’t look like you have Parkinson’s….”

Reimagining my present and future…

As I am sure many of us do, I have been very guilty of harking back to what my husband and I used to do together. Walking in the Port Hills, here in Christchurch was a favourite and we could walk for 4-6 hours sometimes, with a break for lunch to admire the gorgeous views.Continue reading “Reimagining my present and future…”

Life is like a game of bowls….

I have just returned home from playing outdoor bowls for the afternoon. I always enjoy Saturday afternoon as it is a laid back ‘roll-up’ with no pressure or prizes. At the moment it is Winter Bowls where we pay an amount for the Winter season until the Summer Bowls start. Either that or $5, asContinue reading “Life is like a game of bowls….”

Travelling and listening to my body…

At the moment, my husband and I are in the UK, specifically in Wales in a place called Betsw-y-coed. It is a beautiful place and popular with tourists. The reason we are here in particular is that we are catching up with some friends that my husband made through some walking holidays. When I sayContinue reading “Travelling and listening to my body…”

Repurposing and finding purpose

The photos are of a couple of things that I have repurposed in my garden. Sure, they will rust or decay at some point, but in the meantime, they are a quirky and unique thing in my garden. Rather like the quirky and unique me, that repurposed them to be something that makes me smileContinue reading “Repurposing and finding purpose”