For those of you who might be interested, I also have a podcast, “My journey with Parkinson’s”. It is available on most podcasting services, but certainly on Spotify and You tube and Apple podcasts. Check out this latest podcast and have a look around, there may be other topics of interest too. Also, I haveContinue reading “The joy of retirement and the importance of social interaction. The podcast….”
Author Archives: kiwipommysue
The joy of retirement…. and the power of social connection
I retired just over two years ago now and as I was pottering around at home, I reflected on how much I love being retired. I have never felt as free as I do today in my ability to live my life as I choose. I have also never felt freer in a marriage thanContinue reading “The joy of retirement…. and the power of social connection”
Environments can be disabling…
The idea of disability can mean different things to different people. Some may only see a person as disabled if they have obvious outward and physical signs that lead them to be labelled as ‘disabled’. It is often, in my experience a somewhat fluid way of being when talking about disability or being disabled. IfContinue reading “Environments can be disabling…”
A creature of habit, not of routine…
I suppose many of us would have some things that we do that others may see as a little strange. Some habits and preferences, that for some reason we need to have to be comfortable. I certainly do! Here is an example of some of those things for me. The loo (1). When I workedContinue reading “A creature of habit, not of routine…”
Intermittent and insidious symptoms
I was looking for some words to describe the portrayal of symptoms in a person with Parkinson’s. Parkinson’s is: The first one I came up with was ‘intermittent‘ because for me and I am sure for many others, the symptoms can be quite successfully controlled with the right medications. This has certainly been my experience.Continue reading “Intermittent and insidious symptoms”
It’s been a funny old week…
Having been termed ‘a slow burner’ by my Parkinson’s Nurse, I may have been lulled into a false sense of security. For the past six years since being diagnosed, I have had little change in my presentation up to now. Recently, however, I have noticed some changes in myself such as worsening memory, voice changesContinue reading “It’s been a funny old week…”
Everybody needs good friends…
Talking to my husband today, I said to him that I am so lucky to have him and his support and also the support of my new friends and of course my family. I don’t know how anyone copes with a huge diagnosis like this on their own. I only hope that those who don’tContinue reading “Everybody needs good friends…”
Looking through family photos
This afternoon, I have been rummaging through boxes of family photos. My daughter had asked me to find any photos of her that I could for something she is doing for a significant birthday. Like anyone who has ever moved from house to house, things that you don’t need or use regularly often doesn’t evenContinue reading “Looking through family photos”
“Oh, how the times have changed!”
How did I get from the girl who loved to party, drink and indulge in things as a teenager, to the sensible (mostly) woman I am now. I often have said, it’s just as well I left Rotorua for other parts, there’s no-one to tell on me and recount my misdemeanors to anyone! I wasContinue reading ““Oh, how the times have changed!””
Getting organised
OMG. Technology! Talk about trying to be organised! Tried to get AI to group these photos was a bit of a nightmare. These are some of the things I use to try and organise my life. The pill box is handy as it has separate compartments to keep the meds together in the right place.Continue reading “Getting organised”
