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Parkies makes me brave…

The thing I notice with myself since being diagnosed is this. I am more prone to take the Bull by the horns as it were and be proactive in making decisions for my life. I am less inclined also to allow people to treat me in a way that is unacceptable to me. Two situations…

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Is this a dream? Or is it reality?

It may seem strange, but sometimes this whole Parkies thing has an unreal quality about it. I go about my daily life – and probably due to medications – I feel, for want of a better word ‘normal’. I can still walk really well and with my daily exercise routine my arm swing is pretty…

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To Blog or not to Blog that is the question…

Why do I Blog? What inspired me to take the step to put my thoughts and feelings down for others to see? I know that feelings are complicated things. Sometimes talking about how we feel to an actual person can be difficult. We feel exposed, we risk judgement, we lay ourselves bare to others’ opinions.…

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Being judged and ‘Disabled’ by others

For the first time since this diagnosis I felt that someone judged and defined me by my ‘condition’. I returned to work after three weeks off – I am an essential worker in a hospital – and there was an HR requirement that I fill in an online questionnaire about my physical health. This is…

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Driving, anxiety and awareness

I have always been a reasonably confident driver, though for some reason if my husband is in the car I do not quite drive the same. Now I find – and I think this is a Parkies effect – that I lack confidence when parking and backing the car. It is a bit of a…

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When the chips are down

I am fortunate to have an incredibly supportive husband and have mentioned this before. At the moment things have become incredibly stressful and once more he has shown me amazing support. As I sit and reflect on our lives at present, we are dealing with a higher than average level of stress and yet his…

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My first Parkies Conference

This weekend I attended my first Parkinson’s Conference in Rotorua. The UPBEAT Conference for people Under 65 years and their partners/support people. It was, just as the name suggests, an upbeat and positive experience meeting with people who are also on this journey and learning about their challenges and how they continue to live their…

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I’m a planner

Maybe it’s my natural inclination, maybe it’s my training as a Social Worker, but I know that I am a planner. I like to know what I am doing and who I am doing it with in almost every aspect of my life. Don’t get me wrong, there is room for spontaneity, but I do…

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Strength in numbers

It is strange to me that I have spent my life resisting a lot of group activities and yet I find myself embracing groups since my diagnosis. While I have over the years joined a gym and attended from time to time, gym classes left me cold. When I have tried to join in gym…

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