Looking after my body…
I think many of us – me included – can be guilty of not looking after our bodies as we perhaps should. I certainly have subjected my body to too many treats, while I try to fight my way back after three surgeries over a period of four years. Because I have had limited mobility…
Keep readingThe joy of retirement and the importance of social interaction. The podcast….
For those of you who might be interested, I also have a podcast, “My journey with Parkinson’s”. It is available on most podcasting services, but certainly on Spotify and You tube and Apple podcasts. Check out this latest podcast and have a look around, there may be other topics of interest too. Also, I have…
Keep readingThe joy of retirement…. and the power of social connection
I retired just over two years ago now and as I was pottering around at home, I reflected on how much I love being retired. I have never felt as free as I do today in my ability to live my life as I choose. I have also never felt freer in a marriage than…
Keep readingEnvironments can be disabling…
The idea of disability can mean different things to different people. Some may only see a person as disabled if they have obvious outward and physical signs that lead them to be labelled as ‘disabled’. It is often, in my experience a somewhat fluid way of being when talking about disability or being disabled. If…
Keep readingA creature of habit, not of routine…
I suppose many of us would have some things that we do that others may see as a little strange. Some habits and preferences, that for some reason we need to have to be comfortable. I certainly do! Here is an example of some of those things for me. The loo (1). When I worked…
Keep readingIntermittent and insidious symptoms
I was looking for some words to describe the portrayal of symptoms in a person with Parkinson’s. Parkinson’s is: The first one I came up with was ‘intermittent’ because for me and I am sure for many others, the symptoms can be quite successfully controlled with the right medications. This has certainly been my experience.…
Keep readingIt’s been a funny old week…
Having been termed ‘a slow burner’ by my Parkinson’s Nurse, I may have been lulled into a false sense of security. For the past six years since being diagnosed, I have had little change in my presentation up to now. Recently, however, I have noticed some changes in myself such as worsening memory, voice changes…
Keep readingEverybody needs good friends…
Talking to my husband today, I said to him that I am so lucky to have him and his support and also the support of my new friends and of course my family. I don’t know how anyone copes with a huge diagnosis like this on their own. I only hope that those who don’t…
Keep readingLooking through family photos
This afternoon, I have been rummaging through boxes of family photos. My daughter had asked me to find any photos of her that I could for something she is doing for a significant birthday. Like anyone who has ever moved from house to house, things that you don’t need or use regularly often doesn’t even…
Keep reading“Oh, how the times have changed!”
How did I get from the girl who loved to party, drink and indulge in things as a teenager, to the sensible (mostly) woman I am now. I often have said, it’s just as well I left Rotorua for other parts, there’s no-one to tell on me and recount my misdemeanors to anyone! I was…
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