Today I feel like ‘a Parkies person’
Being early on in this journey and with medication working effectively, Parkies is not so much in the forefront of my mind these days. I take my medication, I go about my life and pretty much most of the time I can almost ignore the spectre that is this condition. However, at the moment life…
Keep readingA weighty problem
This is a topic I have touched on before, but one that continues to challenge me. I know that Parkinson’s at some point leads to weight loss, but at the moment my issue is quite the reverse. Some of it is ‘comfort eating’ because we have had a very stressful time of it over the…
Keep readingMaking the most of life and not putting things off
Today has been an amazing day. The sun was shining, I was feeling good and I spent it with my favourite person, my husband. We have been exploring what will be our new neighbourhood and this included a lovely riverside walk. Birds were singing and the scenery was gorgeous and we both enjoyed the opportunity…
Keep readingFeeling ‘lucky’ to have Parkinson’s!?!
This may seem a strange thing to say and in many ways it is. Parkinson’s is not exactly a gift in my life, but in these early stages it is managable. The reason for my statement about feeling lucky is because of two conversations I have had recently with people regarding significant life limiting conditions.…
Keep readingSay ‘I love you’ while you can
As I have said before, there is nothing like a significant diagnosis to focus the mind and change your perspective. Many times I have been to funerals and heard people speak about how much they loved and admired the person who has passed. How often I have wondered if that person had known in their…
Keep readingIt’s the simple things that matter
Yes, it’s the simple things that matter when it comes to life and time spent with family. It’s not about seeing the latest movie or buying them the latest clothes, it’s about time spent with each other. I know from my own childhood I fondly remember spending time with my Nanna when she would fly…
Keep reading‘I am woman, hear me roar!’
This has long been a song that I identify with. An anthem for all women. We are strong! We are invincible! It talks about a life that has had adversity but where she ‘comes back even stronger’. It speaks to me even more since my diagnosis. And yes ‘… I’ve been down there on the…
Keep readingRest, Recovery and Re-evaluation
I am currently recovering from a shoulder operation which I had in September. I knew it was going to be quite a lot of recovery, but not really prepared for the fact that seven weeks from the operation, I am still having to work hard on my rehabilitation. I have been having showering assistance for…
Keep readingParkies is a part of me
I have spoken before about how open I have been about my diagnosis, since almost the moment I was diagnosed. I find that I refer to it quite often in my interactions with people, in part so they can hopefully understand that I have – or may have – additional needs compared to ‘Non Parkies’…
Keep readingFeeling vulnerable and getting help…..
So, here I am two weeks following an operation on my shoulder. I had a torn tendon on my Parkies affected side and – already having some issues due to my Parkinson’s – the decision was made to have the operation. So, subsequently my left arm is in an immobilizing brace and I am very…
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My journey with Parkinsons 