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Why are doctors reluctant to refer?

I met with someone recently who I know and who I was unaware has also recently been diagnosed with Parkies. They are in the early stages – just six weeks ago – and very much going through the ‘Grief and Shock’ stage. Their story struck a chord for me for many reasons. I remember the…

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I don’t have time for Parkies right now!

I have been a bit absent from my Blog for the last couple of weeks. Maybe that’s a good thing? A good thing because maybe I am letting go of my focus on Parkies and what it means for my life. Maybe, just maybe, I am finding a space slowly that puts Parkies in the…

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These legs were made for walking

I have been thinking about how much we take walking for granted and balance too for that matter. The weekend for me starts on a Friday and I have a Parkies exercise class that is now part of my life. One exercise involves a wide side step with wide arms and back to the centre.…

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A mixed bag this week

I am aware that in recent times my blog posts have not been the most positive. With everything that happens in life, work/life balance etc just getting through a week can be stressful. There have been high points and not so high points – no real lows, so that’s a bonus – and so, yes,…

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I wish I could live more in the moment..

Yesterday I met for the first time another person affected by Parkinson’s, who has been diagnosed longer than I have. She seemed so together and – while she acknowledged her challenges in life – talked about living in the moment and not worrying about what will happen in the future so much. I wish I…

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‘Adulting’ is hard…

I am very much trying to face this thing I call ‘Parkies’ head on. Being proactive, rather than reactive as much as I can. There are decisions I could easily defer for a while, but not knowing what ‘a while’ looks like can at times be difficult. So, one of the decisions I have been…

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Should I wait or lose weight?

For most of my life I have battled with my weight, trying various avenues to reduce my weight, with varying levels of success. Right now I am overweight, no getting around it – my husband says I’m not fat, just ‘chubby’. Any way you look at it, I could do with shedding a few kilos.…

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Grief, Depression(?) and Big decisions

It has been a challenging time, this last few months. Not only have I recently been diagnosed with Parkies, but lost someone very close and dear to me two months before. So, to me it is natural that I am grieving for the loss of a special person in my life, but also the loss…

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Planning for the future

While I try my best to live for today, I continue to consider and plan for the future and what changes we may need to make in our lives together. I am a planner. I always have been. Partly, it’s my training as a Social Worker, looking at the ‘what if’s?’ We live in a…

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