So you’ve got Parkinson’sSo you’ve got Parkinson’s what does it meanAre you the person that you’ve always been?So you’ve got Parkinson’s who do you tellOnly those closest who know you so well?So you’ve got Parkinson’s what have you leftHave dreams all been lost and so you’re bereft?So you’ve got Parkinson’s a specialist saidWhat are youContinue reading ““So you’ve got Parkinson’s the poem….””
Tag Archives: health
Recovery or regression?
At the moment I am away for a few days with my husband. After four years of pain both from my knee and my back it is sometimes difficult to figure out what causes each new bout of pain. We were going for a gentle bush walk and I was feeling very tired right fromContinue reading “Recovery or regression?”
A Health Passport and other information…
One of the things about being a Social Worker, is that a good Social Worker is skilled at first getting information from a client or patient. This is important because the Social Worker can then ensure that they provide information and support in relation to that person’s individual needs and preferences. When a person isContinue reading “A Health Passport and other information…”
Do I want to know or do I not?
It sometimes seems to me when you have a ‘condition’ – I refuse to think of myself as ‘diseased’ – that reference to that condition crops up everywhere. Of course with social media being what it is and clever little algorithms (or whatever) stalk you and this affects what comes into your feed. While IContinue reading “Do I want to know or do I not?”
Tough times and tough decisions…
I was reading a post that was on a Facebook page for people with Parkinson’s and their carers/family/supporters. It is a very useful page, because it gives different perspectives and often the discussions are really useful, those of us “experts” on Parkinson’s can share our experiences and help each other. You will note that IContinue reading “Tough times and tough decisions…”
Things are going swimmingly… or are they?
For months now, I have been going to the local swimming pool as I recover from my back operation in February 2025. It was recommended by the surgeon that I do aqua jogging as the best exercise especially in those early days. It is actually very basic. You strap a flotation belt on – IContinue reading “Things are going swimmingly… or are they?”
It’s been a bit of an up and down week this week!
This week has certainly been a busy week, as bowls starts to really get going. This will be my first proper season, where I get to play in inter-club games. They are on a Wednesday morning and a Saturday morning and we are expected to put up our hand for both. Add on to thatContinue reading “It’s been a bit of an up and down week this week!”
Things that help…
One thing that I know for sure is that there is no “One size fits all” magic thing that will be the thing that everyone needs. What works for one person and makes them feel supported can be very different for another person. We are after all, individuals with individual personalities and needs. I haveContinue reading “Things that help…”
Feeling ‘Parkies’ today…
In my life at the moment, for the most part I just carry on with my life and am very much enjoying my retirement again. I am enjoying the various activities I have chosen and most days I have something planned that I enjoy doing. I can therefore, just get on with things and notContinue reading “Feeling ‘Parkies’ today…”
Forgetting….
When I open up to people about my Parkinson’s – which I often do early on – one of the first things they tend to say is that I don’t look like someone with Parkinson’s. They also say that they don’t notice any issues with standing, walking or tremors. All of the above is true.Continue reading “Forgetting….”
