The problem with doing well… a hidden disability

I have been open from almost the first day of diagnosis about my having Parkinson’s. I have shared it with my family and friends and also my colleagues at work. At first people were very sympathetic and it felt like they understood that I might be more challenged by things than previously. However, just likeContinue reading “The problem with doing well… a hidden disability”

Coping

I watched this presentation yesterday by Matthew Croucher. He is such a good presenter and he presented at the Parkinson’s Conference my husband and I went to a few years ago. The previous topic was about Anxiety, which is very much one of the things that go with Parkinson’s. He talked about ‘Coping’ with Parkinson’sContinue reading “Coping”

Anniversaries are always hard

Today is an anniversary for me and for my family. Two years ago today we lost my son Adam aged just 38 years of age. He had an undiagnosed heart condition and passed in his sleep. It was a huge shock to us all. Today we think of him and the many memories we shareContinue reading “Anniversaries are always hard”

Mum and Dad…

Writing my Blog tonight and then sitting in my spa pool listening to music with a glass of red wine. Trying to de-stress and lift my low mood. Then I got to thinking about my Mum and Dad, who both also had Parkinson’s. I have encouraged my children to read my Blog, so that theyContinue reading “Mum and Dad…”

Sometimes I cry…

Sometimes for no apparent reason I cry. I put a brave face on most of the time and can almost ignore the fact that I have Parkinson’s. I go about my daily business, doing my job, living my life and feeling pretty normal. Then out of the blue, it’s like something snaps me back toContinue reading “Sometimes I cry…”

Is it OK to be a bit selfish sometimes??

This journey I am on with Parkinson’s has many twists and turns and challenges. It has made me appreciate life more in many ways. As I have said in other posts previously, my family has become more important to me and spending time with them is high on my list of priorities. However, there areContinue reading “Is it OK to be a bit selfish sometimes??”

Grief and loss…

As anyone will know that reads this Blog, I am a Social Worker working in a Neurological Ward for people under the age of 65 with a brain injury. We have some very young people from time to time and with a diagnosis can come a lot of grief and loss. Many think of griefContinue reading “Grief and loss…”

More than my fair share…

I have said before now that Parkies is not the only health issue that I have. I have arthritis in my hands and beginning in my knees and also in my back. I have had to have four operations to put in artificial finger joints because of my arthritis. I also have a hiatus herniaContinue reading “More than my fair share…”

None of us are promised tomorrow…

Feeling in a reflective mood this evening. I went to work as usual today and asked about a patient that had to go back to the main hospital as he had become unwell. I was then told that the patient had died over the weekend. He was only in his mid 30’s. I was shockedContinue reading “None of us are promised tomorrow…”