I’m doing well

I had an appointment with the Parkinson’s/Neurological Nurse this week. She works closely with my Neurologist and I had had a change of medication recently and he asked her to check how things are going. It was a very positive appointment and she talked through if I had noticed any improvement or had any issuesContinue reading “I’m doing well”

Looking after people I love

I have spoken before about a thing called ‘Acts of Service’ that a Counsellor once described to me. It is about saying ‘I love you’ with actions rather than words. I like to look after people that I love. My husband, my children, my grandchildren. It is my ‘I love you’ in physical form. MyContinue reading “Looking after people I love”

Last night I cried… after writing my last post

I wrote in my last post about how sometimes I try to wish away this thing I call ‘Parkies’. Wishing it weren’t my reality. My husband read my post and reassured me that I am doing well and that he sees me coping with the diagnosis and mostly just getting on with life. However, buriedContinue reading “Last night I cried… after writing my last post”

Knowing (and accepting) when you need help!

I have always prided myself on my independence and have been loathe to accept help unless I really need it. In this latest chapter of my life journey, now more than ever I need to be more open to accepting help. As mentioned in my last post, I had a fall on 30/12 and injuredContinue reading “Knowing (and accepting) when you need help!”

Say ‘I love you’ while you can

As I have said before, there is nothing like a significant diagnosis to focus the mind and change your perspective. Many times I have been to funerals and heard people speak about how much they loved and admired the person who has passed. How often I have wondered if that person had known in theirContinue reading “Say ‘I love you’ while you can”

Parkies is a part of me

I have spoken before about how open I have been about my diagnosis, since almost the moment I was diagnosed. I find that I refer to it quite often in my interactions with people, in part so they can hopefully understand that I have – or may have – additional needs compared to ‘Non Parkies’Continue reading “Parkies is a part of me”

Being grateful when it feels like there is nothing to be grateful for!

Phew! That’s my longest heading yet! As I write this, we in New Zealand are in ‘Level 4’ lockdown. The lockdown we experience in NZ may be one of the toughest – if not the toughest – in the world! Unless you are an essential worker – which both of us are – you areContinue reading “Being grateful when it feels like there is nothing to be grateful for!”

When the chips are down

I am fortunate to have an incredibly supportive husband and have mentioned this before. At the moment things have become incredibly stressful and once more he has shown me amazing support. As I sit and reflect on our lives at present, we are dealing with a higher than average level of stress and yet hisContinue reading “When the chips are down”

My first Parkies Conference

This weekend I attended my first Parkinson’s Conference in Rotorua. The UPBEAT Conference for people Under 65 years and their partners/support people. It was, just as the name suggests, an upbeat and positive experience meeting with people who are also on this journey and learning about their challenges and how they continue to live theirContinue reading “My first Parkies Conference”