A Parkinson’s Facebook Page that I am on asked the question ‘what are you grateful for?’ One thing I love about that page is the sense of community and positivity that it gives us all. Sometimes, while we are working our way through life with a degenerative condition, it is all too easy to focusContinue reading “I am grateful…”
Tag Archives: support
Finding my tribe…
I often say that there is nothing like a shared experience to bring people together. I know when I was a very young first time Mum – at age 20 – that getting together with other Mums and sharing our experiences and things that worked for us, was really useful. You knew that others wereContinue reading “Finding my tribe…”
Valentines Day…
romance in the air?? So today is 14 February, Valentines Day. A day when – if we have them – some of us might make romantic gestures towards our partners. Or perhaps a secret admirer will emerge to sweep us off our feet with sweet roses and sweet nothings? But what is romance really? IsContinue reading “Valentines Day…”
Travels and making memories
I was reading another Blogger’s post today about her and her husband’s trip to Hawaii recently. She shares the same attitude that I do, that now is the time to be making trips away and doing activities that may not be possible in the future at some point. Some may say that focussing on aContinue reading “Travels and making memories”
If you care, will you go into care?
I was reading a post by someone on a Facebook Page for people with Parkinson’s and their carers tonight. It was posted by the daughter of someone who has Parkinson’s and whose husband has become her carer. Both parents are in their 80’s. Doctors have recommended that the Mother with Parkinson’s needs to go intoContinue reading “If you care, will you go into care?”
What would I tell my newly diagnosed self…
I am a member of a Parkinson’s Facebook group and find it very helpful hearing from others with this condition. It is a very positive group and they have themes on it like ‘Talent Tuesday’ where you are encouraged to share a skill or talent you have. Other days have other themes, but always youContinue reading “What would I tell my newly diagnosed self…”
Mum and Dad…
Writing my Blog tonight and then sitting in my spa pool listening to music with a glass of red wine. Trying to de-stress and lift my low mood. Then I got to thinking about my Mum and Dad, who both also had Parkinson’s. I have encouraged my children to read my Blog, so that theyContinue reading “Mum and Dad…”
It’s not all about me…
Strange to say, but ‘It’s not all about me’ this Blog is a part of the story of my life in my journey with Parkinson’s, but it is also about my family. With the weekend coming up, I had made plans to have my three grand-daughters to stay for the weekend. They are 13 yearContinue reading “It’s not all about me…”
Acts of Service…
I came across this on another Blogger’s site. It reminds me of something my husband and I learned years ago from a Counsellor. It is a thing called ‘Acts of Service’. Acts of service, or perhaps my interpretation of it, is saying ‘I love you’ without saying it in words. While it is still lovelyContinue reading “Acts of Service…”
Understanding can be fleeting or non-existent…
I am on a Facebook page called Australia and NZ Parkinson’s Support and Chat group. It is a valuable resource for people with Parkinson’s and their carers/supporters/whanau. I saw this today and thought it would be a good thing for someone to make for those of us in New Zealand. It got me thinking though.Continue reading “Understanding can be fleeting or non-existent…”
My journey with Parkinsons 