I have always been a talker. It is no surprise to people who know me that I used to get into trouble at school for talking too much! Words are wonderful and I have always been told that I have a way with words. These days I put many of my thoughts and feelings into my blog as it helps me to process and also, I hope that it helps others reading about my day to day life with Parkinson’s.
Parkinson’s is one of those conditions where people are often apt to say, “You look great, I can’t even tell you have Parkinson’s” or words to that effect. They look at your physical presentation and perhaps think that the physical is the only way we are affected. However, those of us living with this unwelcome squatter in our lives, know the many and varied ways in which Parkinson’s can – and does – affect us.
Of course people only know Parkinson’s when it is obvious. How could they know about the cognitive affects that many have? The memory issues, the fatigue, the apathy, denial, depression and many other dubious gifts we receive with this condition.
I am putting out an appeal here. I would love to get some more people to interview for “Parkies Patter – a chat about all things Parkinson’s” where I interview people affected by Parkinson’s. People affected can be anyone that closely supports a person with Parkinson’s. What is it like for you, this journey? An unplanned and certainly for me at least, an unwelcome journey!
My background is as a Social Worker working in health for 20+ years. Prior to that I did a Bachelor of Broadcasting Communications and worked on a small town radio breakfast show. I also had both my parents with Parkinson’s so I have a lot of personal experience of dealing with this condition. So, I know how to interview and how to be sensitive to people’s needs and to understand that it can be difficult to talk about. I only do audio recordings, so if you are more comfortable in your PJ’s then by all means wear your PJ’s, fluffy slippers and dressing gown! I might just join you.
Prior to getting anywhere near recording, I will have a video chat with you. I like to see who I am talking to and when recording we will be able to see each other, but only the audio is recorded. I will ask what topics you do not wish to talk about and will respect whatever boundaries you need.
So, if you or anyone you know that is affected by Parkinson’s would like to give it a go recording and sharing some insights into how your Parkinson’s affects you, I would love to hear from you. If you PM me on Facebook under Sue Waight, we can discuss and hopefully you or someone you know and/or support will be open to being interviewed by me.
