To tell or not to tell that is the question!

One of the first discussions my husband and I had following my diagnosis, was how soon to tell people, especially at work.  Being a very private person, his take was “you don’t have to rush into telling people”.  I thought about this for a nano-second – yes, I can be very decisive when I wantContinue reading “To tell or not to tell that is the question!”

Words are important

I know there will be changes to my body in the future. I think I am prepared for that. The thing that I am not looking forward to, is that one day my voice will change and my words both spoken and written may leave me. I have had some symptoms which apparently can beContinue reading “Words are important”

Decisions, decisions…

Today was our 14th Wedding Anniversary and my husband and I had a lovely day together. We have been looking at planning a few trips over the next few years. Starting with a trip to Queenstown in October. Hoping to go to Rarotonga next year and then perhaps to UK in 2026. The problem withContinue reading “Decisions, decisions…”

Making memories and keeping family memories alive…

This weekend I have had my three lovely grand-daughters to stay over. The twins (15) had planned a sleepover with a friend for Saturday, so only stayed one night – with teenagers you take what you can get – and the youngest (10) stayed an extra night with Nanna and Grampy as the teenagers doingContinue reading “Making memories and keeping family memories alive…”

Learning to bowl… with a Parkies brain

A good example of how slowed processing in my Parkies brain, can make things more challenging than for the average person. Too much information, from too many people, in a short space of time just ends up a confusing jumble in my mind. So I wrote this poem… Learning to bowlWhich side is the bais,Continue reading “Learning to bowl… with a Parkies brain”

You MUST remember….

How many times have we been in conversation and it goes something like this. Me: “How do I get to…” Him: “You MUST remember, we’ve been there so many times!” Me: “Nope. I don’t have to take notice when you are driving” or “I just can’t remember which fork to take in the Motorway, maybeContinue reading “You MUST remember….”

Cognitively Coping?

My thoughts regarding Cognitively Coping, are somewhat confused at best. As I try to analyze what is happening, if I think too long and too hard then that only serves at times to make matters worse. I know when I am talking to anyone else who can’t quite get to what they want to say,Continue reading “Cognitively Coping?”

Warm knees and Warm memories

Just over four months ago I started a project to crochet knee rugs for one of the local resthomes. They are just the right size to cover knees and laps when sitting in a chair or wheelchair and won’t get in the way of wheels. I started doing them because I wanted something to doContinue reading “Warm knees and Warm memories”

Don’t wait till you retire…

I was having a chat to a friend of mine today and the subject of retirement came up. Another friend joined in and we had a good discussion about how we all know people who have worked hard all their lives and who had plans for travelling once retired. All too often the dream ofContinue reading “Don’t wait till you retire…”

In house jokes and sayings

Every family and every couple I’m sure have sayings and in house jokes that others wouldn’t get. Those ‘you had to be there’ moments, like this morning when our grandson and I showed Grampy a clip from Shaun the Sheep. Grandson had played and replayed the clip yesterday, cracking up each time. We decided toContinue reading “In house jokes and sayings”