Those of you who have followed me for a while will know that I have a confusing cocktail of conditions (the CCC’s) one of them being of course Parkinson’s aka Parkies. It is sometimes difficult to find the cause of a particular symptom or pain because of this. I have back pain, but have undergoneContinue reading ““At your age”…”
Category Archives: medications
“Just in case!”
Just in case, is a phrase that has been used by me and to me all my life in many, many different scenarios. And I just thought I’d talk through a few of them. So when we were kids there was four children in the family, my three older brothers and I, and mum andContinue reading ““Just in case!””
I can pick a Parkies – do I ask?
Yesterday was a good day. My first ever Tournament playing bowls. This was the culmination of two full day coaching sessions and an opportunity to put learning into practice. This was a big day for me and I was incredibly nervous. I had the nervous wees and other things! I’m not sure exactly why IContinue reading “I can pick a Parkies – do I ask?”
Some thoughts on travelling…
I have just loaded a podcast onto my page on Spotify. It is an interview with two members of our Parkies support group, a husband and wife who have had many adventures travelling together. From talking with them, a degree of spontaneity has always been part of how they travel, both together and individually. ThisContinue reading “Some thoughts on travelling…”
How do you ignore such a pest as Parkies?
From the moment I heard the fateful words proclaiming that I now had to share my life with Parkies, I thought it would take over my life. For my life to be that of a Parkies “sufferer” seemed the likely outcome. Then, something interesting happened. I suppose it could be the Social Worker in meContinue reading “How do you ignore such a pest as Parkies?”
Be your own best advocate always…
As people with complex health conditions and also for those that support us, it can be easy to let the ‘professionals’ call the shots when it comes to decisions. They can be decisions large or small, but perhaps if we get into a cycle of always agreeing with these professionals without question, we may alsoContinue reading “Be your own best advocate always…”
Am I an anxious person? She asks anxiously….
Today I went to see the specialist Parkinson’s Nurse that works with my Neurologist. I had requested to see her, as I had been noticing a number of things that made me think that I have progressed – or is it regressed – with my Parkinson’s. We talked about swallowing problems, excess saliva and theContinue reading “Am I an anxious person? She asks anxiously….”
Comorbidities Confuse Cause or cause confusion!
When you have a bunch of different health issues – ie. Comorbidities – it is sometimes difficult to know the cause of a new ache or pain and/or who to talk to about it! The risk of course is that we just shrug our shoulders and think it must be related to Parkinson’s when itContinue reading “Comorbidities Confuse Cause or cause confusion!”
How do you describe a feeling?
I was talking to my husband yesterday and asked him this question. “Have you ever had that feeling when you hear something pleasurable or see something pleasurable and you get a sort of tingling sensation?” He said, “No, but I have songs that I hear that bring back nice memories for me!” I then wentContinue reading “How do you describe a feeling?”
To medicate or not to medicate that is the question…
If you are in the early stages of Parkies and even those a few years down the track, there seems to be a lot of variation in when or if people have commenced any sort of medication. This podcast talks about my choice which was to medicate immediately on the advice of my very experiencedContinue reading “To medicate or not to medicate that is the question…”
My journey with Parkinsons 