Today I was watching one of the series I follow on Netflix. I don’t know what I would do without Netflix and other streaming services, especially when I have been recovering from one of yet another surgeries. When you are immobile or have limited and painful mobility, any distraction that doesn’t hurt is invaluable! Anyway,Continue reading “It is better to know”
Category Archives: medications
“So you’ve got Parkinson’s the poem….”
So you’ve got Parkinson’sSo you’ve got Parkinson’s what does it meanAre you the person that you’ve always been?So you’ve got Parkinson’s who do you tellOnly those closest who know you so well?So you’ve got Parkinson’s what have you leftHave dreams all been lost and so you’re bereft?So you’ve got Parkinson’s a specialist saidWhat are youContinue reading ““So you’ve got Parkinson’s the poem….””
“So you’ve got Parkinson’s” – some thoughts and a poem
So you’ve got Parkinson’s. Does that mean that everything else in your life must take a back seat and let this beast of a condition take over? No way, I say! Parkinson’s is like the freebee you get with something you wanted to buy. You take it, cos maybe you feel you ought to, butContinue reading ““So you’ve got Parkinson’s” – some thoughts and a poem”
Do I want to know or do I not?
It sometimes seems to me when you have a ‘condition’ – I refuse to think of myself as ‘diseased’ – that reference to that condition crops up everywhere. Of course with social media being what it is and clever little algorithms (or whatever) stalk you and this affects what comes into your feed. While IContinue reading “Do I want to know or do I not?”
“At your age”…
Those of you who have followed me for a while will know that I have a confusing cocktail of conditions (the CCC’s) one of them being of course Parkinson’s aka Parkies. It is sometimes difficult to find the cause of a particular symptom or pain because of this. I have back pain, but have undergoneContinue reading ““At your age”…”
“Just in case!”
Just in case, is a phrase that has been used by me and to me all my life in many, many different scenarios. And I just thought I’d talk through a few of them. So when we were kids there was four children in the family, my three older brothers and I, and mum andContinue reading ““Just in case!””
I can pick a Parkies – do I ask?
Yesterday was a good day. My first ever Tournament playing bowls. This was the culmination of two full day coaching sessions and an opportunity to put learning into practice. This was a big day for me and I was incredibly nervous. I had the nervous wees and other things! I’m not sure exactly why IContinue reading “I can pick a Parkies – do I ask?”
Some thoughts on travelling…
I have just loaded a podcast onto my page on Spotify. It is an interview with two members of our Parkies support group, a husband and wife who have had many adventures travelling together. From talking with them, a degree of spontaneity has always been part of how they travel, both together and individually. ThisContinue reading “Some thoughts on travelling…”
How do you ignore such a pest as Parkies?
From the moment I heard the fateful words proclaiming that I now had to share my life with Parkies, I thought it would take over my life. For my life to be that of a Parkies “sufferer” seemed the likely outcome. Then, something interesting happened. I suppose it could be the Social Worker in meContinue reading “How do you ignore such a pest as Parkies?”
Be your own best advocate always…
As people with complex health conditions and also for those that support us, it can be easy to let the ‘professionals’ call the shots when it comes to decisions. They can be decisions large or small, but perhaps if we get into a cycle of always agreeing with these professionals without question, we may alsoContinue reading “Be your own best advocate always…”
My journey with Parkinsons 