kiwipommysue

Creating memories to treasure

This gift of Parkinson’s – I know that sounds like a strange way to describe it – but it is a gift because it sharpens the senses, it makes me more aware of the gift of life, of family, of those I love. We would all like to think that we can live forever perhaps,Continue reading “Creating memories to treasure”

The Serenity Prayer – a philosophy to live by…

I have been watching a series on Netflix and this prayer has been recited several times. Though brought up a Catholic, I consider myself not a religious person these days. However, this prayer, this philosophy if you will, speaks to me. I do feel at the moment in my life a form of acceptance ofContinue reading “The Serenity Prayer – a philosophy to live by…”

Taonga (Treasure)

Today I received a Taonga (treasure) from my lovely husband. A belated birthday gift which I shall treasure. In our New Zealand culture, for Maori the Tangata Whenua of New Zealand, greenstone is revered and given as a symbolic gift. Greenstone is something that should be given as a gift not purchased for yourself. ItContinue reading “Taonga (Treasure)”

Working hard and creating a legacy for me…

I notice many changes in the way I view life these days. Since Parkies has moved into my life it – and it’s effects – are not far from my thoughts. A Psychologist I work with said recently that my life should not be all about Parkinson’s. But, in a way it shapes my veryContinue reading “Working hard and creating a legacy for me…”

Parkinson’s is a Pain!

So, I’ve discovered a new symptom that I wasn’t fully aware of previously. I awoke this morning about 5.00am with excruciating pain radiating down my left leg. It was something I hadn’t experienced before and I wasn’t sure if it was Parkies or not. As you do, I looked it up online and apparently painContinue reading “Parkinson’s is a Pain!”

Things are going well

This week I had my twelve month review – albeit 3 months overdue – and I’m glad I did. In the back of my mind, I think I always wonder if I am doing OK. If I am missing signs of progression and being lulled into a false sense of security. So I had myContinue reading “Things are going well”

Finding joy in the strangest places!

Over the past few days, my husband and I have been working around our section together and tidying up. It may seem strange, but I found that I really enjoyed the physicality of lifting items into my car and loading it to take to the dump and then unloading at the dump. Yes, it doesContinue reading “Finding joy in the strangest places!”

On ya bike…

So here it is. My new e-bike. Initially, when they first came out I thought e-bikes were ‘cheating’. In recent times (obviously) I have changed my original opinion and Parkies has everything to do with it. I grew up riding bikes. I have a good Mountain Bike that I’ve had for about 5 years orContinue reading “On ya bike…”

Last night I cried… after writing my last post

I wrote in my last post about how sometimes I try to wish away this thing I call ‘Parkies’. Wishing it weren’t my reality. My husband read my post and reassured me that I am doing well and that he sees me coping with the diagnosis and mostly just getting on with life. However, buriedContinue reading “Last night I cried… after writing my last post”

A sense of unreality

I am regularly plagued by a sense of unreality. That I don’t really have Parkinson’s. That any symptoms I might have can be explained away by overwork, tiredness, age, anything but Parkinson’s. My symptoms are pretty mild. I can walk without shuffling. My balance is pretty good. My reduction in energy levels explained away byContinue reading “A sense of unreality”