So you’ve got Parkinson’s. Does that mean that everything else in your life must take a back seat and let this beast of a condition take over? No way, I say! Parkinson’s is like the freebee you get with something you wanted to buy. You take it, cos maybe you feel you ought to, butContinue reading ““So you’ve got Parkinson’s” – some thoughts and a poem”
Tag Archives: medications
Do I want to know or do I not?
It sometimes seems to me when you have a ‘condition’ – I refuse to think of myself as ‘diseased’ – that reference to that condition crops up everywhere. Of course with social media being what it is and clever little algorithms (or whatever) stalk you and this affects what comes into your feed. While IContinue reading “Do I want to know or do I not?”
Reminiscing – Memory is a strange and wonderful thing!
As I write this, I am sitting in an apartment in Kaikoura having a wee break away in our favourite place. Yesterday, my husband went for a long walk on The Peninsula Walk which is one we used to do together. Last time we came for a visit, I was much earlier in my rehabilitationContinue reading “Reminiscing – Memory is a strange and wonderful thing!”
Some thoughts on travelling…
I have just loaded a podcast onto my page on Spotify. It is an interview with two members of our Parkies support group, a husband and wife who have had many adventures travelling together. From talking with them, a degree of spontaneity has always been part of how they travel, both together and individually. ThisContinue reading “Some thoughts on travelling…”
How do you ignore such a pest as Parkies?
From the moment I heard the fateful words proclaiming that I now had to share my life with Parkies, I thought it would take over my life. For my life to be that of a Parkies “sufferer” seemed the likely outcome. Then, something interesting happened. I suppose it could be the Social Worker in meContinue reading “How do you ignore such a pest as Parkies?”
To medicate or not to medicate that is the question…
If you are in the early stages of Parkies and even those a few years down the track, there seems to be a lot of variation in when or if people have commenced any sort of medication. This podcast talks about my choice which was to medicate immediately on the advice of my very experiencedContinue reading “To medicate or not to medicate that is the question…”
Tap, tap, tapping away…
Every now and again, I check in with myself and try to analyze whether there are any new symptoms or increase in symptoms already present. At the moment, I think I am still functioning reasonably well in most areas, but there have been a few things that I have noticed. Those are the main thingsContinue reading “Tap, tap, tapping away…”
The good and the not so good of medications
For nearly four months now I have been struggling with at times excruciating pain in my left leg predominantly and at times in my left. I have been on a cocktail of drugs for the whole period and nothing really put a dent in the pain. Apparently, the source of the pain is in myContinue reading “The good and the not so good of medications”
Neurology check-up
Today I had the appointment I have been waiting for, for literally years. We finally got in to see my Neurologist. My husband and I were sure that we had not seen him since the day of my diagnosis. However, to our surprise he produced a letter to our GP outlining a meeting we hadContinue reading “Neurology check-up”
Off my game… does that mean?
So today I went to play bowls as I have been doing for a few months now. Tuesdays and Saturdays and it’s a great way to get exercise and socialise with others and have a good afternoon out. It is interesting to note that on Tuesday when I played I had two really good games.Continue reading “Off my game… does that mean?”
My journey with Parkinsons 