When I open up to people about my Parkinson’s – which I often do early on – one of the first things they tend to say is that I don’t look like someone with Parkinson’s. They also say that they don’t notice any issues with standing, walking or tremors. All of the above is true.Continue reading “Forgetting….”
Category Archives: family
Moving on – A village or facility when and why?
I am a planner from way back. I like to know what is happening and when and although I don’t necessarily feel I need to work to a strict schedule, I do like to know I am in control. That makes me sound a bit of a control freak, but it just means that IContinue reading “Moving on – A village or facility when and why?”
Choosing new tattoo…
Not long after leaving my children’s father, I got my first tattoo. It was a reaction to my having been married young and now divorced and feeling like I had slipped into being almost middle aged and boring even though I wasn’t even 30! I wanted to do something to show my new independence andContinue reading “Choosing new tattoo…”
Ability vs Disability
As anyone who follows my blog will know, as I recovered first from my knee replacement surgery and then from my back operation – which was a major – my primary aim has always been to get back to bowls. I feel lucky to be able to now play bowls again and I was ableContinue reading “Ability vs Disability”
Priorities – What do you focus on?
Yesterday a short video clip showed up on a Facebook Page for people with Parkinson’s and those that support them. It was a video of a husband whose wife had been diagnosed some 20 years ago and how he had spent those 20 years. He talked about how he had spent a significant amount ofContinue reading “Priorities – What do you focus on?”
Parkinson’s and work and living with Parkinson’s
I had the privilege a couple of days ago to interview for my podcast “Parkies Patter – a chat about all things Parkinson’s” a lovely couple called David and Clare. David is the person with the condition and has some challenges with his speech, but was able to contribute as and when he was able.Continue reading “Parkinson’s and work and living with Parkinson’s”
Forgetting words – is helping, helping? Or is it hindering?
This is probably a hard one to comment on for most of us. I know there are times when I am trying to tell my husband something and I lose the word, or the direction I was heading in. I often sit and shake my head and say that I have no idea what theContinue reading “Forgetting words – is helping, helping? Or is it hindering?”
Pride goes before a fall… What does that even mean?!?
The saying “Pride goes before a fall” is such a negative outlook on life as far as I am concerned. Giving it this sort of negative attention baffles me. How many times in my life have I felt pride? Pride for something I have done? Something my children have done or my husband? or anyContinue reading “Pride goes before a fall… What does that even mean?!?”
Checking in… how am I doing?
Every now and again, I feel the need to check in with myself and see if I have noticed any changes in my presentation. Because Parkies is a condition that has many facets to it, there may be aspects that I am not fully aware of, but others who know me do. That is theContinue reading “Checking in… how am I doing?”
“By eck, by gum would you Adam and Eve it!”
Pretty random huh! I have been thinking today about the difference our culture can make for us. Also, about the definition of culture. Often culture is seen as part of your ethnicity and that can be true. But, it is also about the experiences and influences that you grew up with and your family culture.Continue reading ““By eck, by gum would you Adam and Eve it!””
My journey with Parkinsons 