“So you’ve got Parkinson’s” – some thoughts and a poem

So you’ve got Parkinson’s. Does that mean that everything else in your life must take a back seat and let this beast of a condition take over? No way, I say! Parkinson’s is like the freebee you get with something you wanted to buy. You take it, cos maybe you feel you ought to, butContinue reading ““So you’ve got Parkinson’s” – some thoughts and a poem”

Recovery or regression?

At the moment I am away for a few days with my husband. After four years of pain both from my knee and my back it is sometimes difficult to figure out what causes each new bout of pain. We were going for a gentle bush walk and I was feeling very tired right fromContinue reading “Recovery or regression?”

There’s a fine line…

I have never been what you might consider by any stretch of the imagination, to be athletic. I have never been particularly good at sports. The only two things that could be considered sporting pursuits that I have participated in have seen hockey – at school – and bowls. I did go to the gymContinue reading “There’s a fine line…”

Feeling frustrated…

Yesterday was one of those days, where so many things outside of my control threatened to upset my equilibrium (big word for the morning) and send me into a mental tail spin. It started with my regular swimming session at the local pool. I am still trying to get the hang of doing freestyle againContinue reading “Feeling frustrated…”

Why are we afraid of tears?

I was born in 1961, in an era where it was common to hear statements like, “Big boys don’t cry!” A huge expectation from quite a young age that boys/men did not cry, did not outwardly show their emotions. Girls/women on the other hand were often dismissed for any show of emotions as being hysterical,Continue reading “Why are we afraid of tears?”

Things that help…

One thing that I know for sure is that there is no “One size fits all” magic thing that will be the thing that everyone needs. What works for one person and makes them feel supported can be very different for another person. We are after all, individuals with individual personalities and needs. I haveContinue reading “Things that help…”

Feeling lucky to have Parkinson’s

  So today I was reminded to count my blessings. , The title of this podcast is Feeling Lucky to Have Parkinson’s, and that is, no doubt going to seem like a weird thing to, to say to actually celebrate having Parkinson’s. But I’ll tell you what happened today. So my husband and I decidedContinue reading “Feeling lucky to have Parkinson’s”

Who am I? What am I?

Throughout life, we grow and we change and I know for me that I have had several identities or ways that I define myself. The way we define ourselves can be complex and multi-facetted. When I was growing up I was the only daughter in my family with three older brothers. I was always theContinue reading “Who am I? What am I?”

Presents vs Presence

So another year is over and a new year begins. Christmas is the season where we gather together with friends and loved ones, if we are lucky enough to have them, and often gifts are exchanged. Receiving a present is always fun, but sometimes we would wish for more of those we love to beContinue reading “Presents vs Presence”

Changing attitudes and priorities…

I have certainly lived a variety of wide and vivid lives over the years. I have morphed into various versions of myself, sometimes knowingly and willingly, sometimes moulded and controlled versions. The 18-20 year old young woman who married at 18 and had their first child at 20 started out – even though I hadContinue reading “Changing attitudes and priorities…”