Today I was watching one of the series I follow on Netflix. I don’t know what I would do without Netflix and other streaming services, especially when I have been recovering from one of yet another surgeries. When you are immobile or have limited and painful mobility, any distraction that doesn’t hurt is invaluable! Anyway,Continue reading “It is better to know”
Category Archives: Looking to the future
Parent to Child – Child to Parent
Below is a link to my blog regarding this topic. When does the change happen that instead of us being the parent and our children obey our rules to them feeling they have the right to impose their rules on us? Sometimes it can feel like just because we have grey hair or no hair,Continue reading “Parent to Child – Child to Parent”
“So you’ve got Parkinson’s the poem….”
So you’ve got Parkinson’sSo you’ve got Parkinson’s what does it meanAre you the person that you’ve always been?So you’ve got Parkinson’s who do you tellOnly those closest who know you so well?So you’ve got Parkinson’s what have you leftHave dreams all been lost and so you’re bereft?So you’ve got Parkinson’s a specialist saidWhat are youContinue reading ““So you’ve got Parkinson’s the poem….””
“So you’ve got Parkinson’s” – some thoughts and a poem
So you’ve got Parkinson’s. Does that mean that everything else in your life must take a back seat and let this beast of a condition take over? No way, I say! Parkinson’s is like the freebee you get with something you wanted to buy. You take it, cos maybe you feel you ought to, butContinue reading ““So you’ve got Parkinson’s” – some thoughts and a poem”
Recovery or regression?
At the moment I am away for a few days with my husband. After four years of pain both from my knee and my back it is sometimes difficult to figure out what causes each new bout of pain. We were going for a gentle bush walk and I was feeling very tired right fromContinue reading “Recovery or regression?”
A Health Passport and other information…
One of the things about being a Social Worker, is that a good Social Worker is skilled at first getting information from a client or patient. This is important because the Social Worker can then ensure that they provide information and support in relation to that person’s individual needs and preferences. When a person isContinue reading “A Health Passport and other information…”
Do I want to know or do I not?
It sometimes seems to me when you have a ‘condition’ – I refuse to think of myself as ‘diseased’ – that reference to that condition crops up everywhere. Of course with social media being what it is and clever little algorithms (or whatever) stalk you and this affects what comes into your feed. While IContinue reading “Do I want to know or do I not?”
An interview with Jeremy
I recorded this interview a few months before Christmas and for some reason, the gremlins got in and it didn’t work properly. I have spent months – when I had the time – trying to get some help to fix it so that it could be uploaded. Over the last two days, I have finallyContinue reading “An interview with Jeremy”
Feeling lucky to have Parkinson’s
So today I was reminded to count my blessings. , The title of this podcast is Feeling Lucky to Have Parkinson’s, and that is, no doubt going to seem like a weird thing to, to say to actually celebrate having Parkinson’s. But I’ll tell you what happened today. So my husband and I decidedContinue reading “Feeling lucky to have Parkinson’s”
Presents vs Presence
So another year is over and a new year begins. Christmas is the season where we gather together with friends and loved ones, if we are lucky enough to have them, and often gifts are exchanged. Receiving a present is always fun, but sometimes we would wish for more of those we love to beContinue reading “Presents vs Presence”
My journey with Parkinsons 