fun – My journey with Parkinsons

“So you’ve got Parkinson’s the poem….”

So you’ve got Parkinson’sSo you’ve got Parkinson’s what does it meanAre you the person that you’ve always been?So you’ve got Parkinson’s who do you tellOnly those closest who know you so well?So you’ve got Parkinson’s what have you leftHave dreams all been lost and so you’re bereft?So you’ve got Parkinson’s a specialist saidWhat are youContinue reading ““So you’ve got Parkinson’s the poem….””

“So you’ve got Parkinson’s” – some thoughts and a poem

So you’ve got Parkinson’s. Does that mean that everything else in your life must take a back seat and let this beast of a condition take over? No way, I say! Parkinson’s is like the freebee you get with something you wanted to buy. You take it, cos maybe you feel you ought to, butContinue reading ““So you’ve got Parkinson’s” – some thoughts and a poem”

Presents vs Presence

So another year is over and a new year begins. Christmas is the season where we gather together with friends and loved ones, if we are lucky enough to have them, and often gifts are exchanged. Receiving a present is always fun, but sometimes we would wish for more of those we love to beContinue reading “Presents vs Presence”

Is Christmas still the same or different?

Here we are on 22/12/25 in the countdown to Christmas. Three days to go for children and grandchildren to be excited for a visit from Santa. Three days to prepare all the things that need to be prepared for things – hopefully – to go smoothly on the day. This year though, for us itContinue reading “Is Christmas still the same or different?”

Forgetting….

When I open up to people about my Parkinson’s – which I often do early on – one of the first things they tend to say is that I don’t look like someone with Parkinson’s. They also say that they don’t notice any issues with standing, walking or tremors. All of the above is true.Continue reading “Forgetting….”

Give a busy woman a job…

A saying that’s been around for ages and I think the rest of it goes “…if you want something done”. That applies to me, because the busier I am the more determined I am to get things done. So, even though we are not having Christmas Day with family as such, we are having aContinue reading “Give a busy woman a job…”

Priorities – What do you focus on?

Yesterday a short video clip showed up on a Facebook Page for people with Parkinson’s and those that support them. It was a video of a husband whose wife had been diagnosed some 20 years ago and how he had spent those 20 years. He talked about how he had spent a significant amount ofContinue reading “Priorities – What do you focus on?”

Age is all relative…

Here I am in my 64th year and thinking ahead to what a significant year for me will be when I turn 65. In New Zealand the age when you qualify for Superannuation is 65 years and so I will finally have some income coming in. I will be officially a “Pensioner”. I’m not quiteContinue reading “Age is all relative…”

Parkinson’s and work and living with Parkinson’s

I had the privilege a couple of days ago to interview for my podcast “Parkies Patter – a chat about all things Parkinson’s” a lovely couple called David and Clare. David is the person with the condition and has some challenges with his speech, but was able to contribute as and when he was able.Continue reading “Parkinson’s and work and living with Parkinson’s”

I’ve got my mojo back!

Those of you who have been following me lately will have noticed – I am sure – that I talk a lot about playing bowls. It was my main rehab goal for both my knee surgery and my recent back surgery. Also, recently I wrote about my disastrous first singles competition in which I wasContinue reading “I’ve got my mojo back!”