So, today is my Anniversary. The Anniversary of that visit to my Neurologist where he uttered the fateful words, ‘I have to tell you, you have Parkinson’s’. What a lot has happened in the intervening 12 months! My thoughts on living for 12 months with this diagnosis: Initial reaction – devastation. Feelings of hopelessness andContinue reading “Happy Anniversary to me… what I have learned in a year!”
Author Archives: kiwipommysue
Using ‘aids’ in the future
Walking along an uneven track near the beach today, it occurred to me – not for the first time – that at some stage this may be difficult for me. Then, straight away something else occurred to me… Yes, maybe one day I won’t be able to walk so well over uneven ground, but soContinue reading “Using ‘aids’ in the future”
Today I feel like ‘a Parkies person’
Being early on in this journey and with medication working effectively, Parkies is not so much in the forefront of my mind these days. I take my medication, I go about my life and pretty much most of the time I can almost ignore the spectre that is this condition. However, at the moment lifeContinue reading “Today I feel like ‘a Parkies person’”
A weighty problem
This is a topic I have touched on before, but one that continues to challenge me. I know that Parkinson’s at some point leads to weight loss, but at the moment my issue is quite the reverse. Some of it is ‘comfort eating’ because we have had a very stressful time of it over theContinue reading “A weighty problem”
Making the most of life and not putting things off
Today has been an amazing day. The sun was shining, I was feeling good and I spent it with my favourite person, my husband. We have been exploring what will be our new neighbourhood and this included a lovely riverside walk. Birds were singing and the scenery was gorgeous and we both enjoyed the opportunityContinue reading “Making the most of life and not putting things off”
Feeling ‘lucky’ to have Parkinson’s!?!
This may seem a strange thing to say and in many ways it is. Parkinson’s is not exactly a gift in my life, but in these early stages it is managable. The reason for my statement about feeling lucky is because of two conversations I have had recently with people regarding significant life limiting conditions.Continue reading “Feeling ‘lucky’ to have Parkinson’s!?!”
Say ‘I love you’ while you can
As I have said before, there is nothing like a significant diagnosis to focus the mind and change your perspective. Many times I have been to funerals and heard people speak about how much they loved and admired the person who has passed. How often I have wondered if that person had known in theirContinue reading “Say ‘I love you’ while you can”
It’s the simple things that matter
Yes, it’s the simple things that matter when it comes to life and time spent with family. It’s not about seeing the latest movie or buying them the latest clothes, it’s about time spent with each other. I know from my own childhood I fondly remember spending time with my Nanna when she would flyContinue reading “It’s the simple things that matter”
‘I am woman, hear me roar!’
This has long been a song that I identify with. An anthem for all women. We are strong! We are invincible! It talks about a life that has had adversity but where she ‘comes back even stronger’. It speaks to me even more since my diagnosis. And yes ‘… I’ve been down there on theContinue reading “‘I am woman, hear me roar!’”
Rest, Recovery and Re-evaluation
I am currently recovering from a shoulder operation which I had in September. I knew it was going to be quite a lot of recovery, but not really prepared for the fact that seven weeks from the operation, I am still having to work hard on my rehabilitation. I have been having showering assistance forContinue reading “Rest, Recovery and Re-evaluation”
My journey with Parkinsons 