As if having Parkinson’s wasn’t enough, I have problems with my spine and legs. I spent a night in hospital because of the pain I have been experiencing. It feels like it came on suddenly and is a difficult thing to try and remember when it first started. It feels really unfair right now thatContinue reading “My body is challenging me…”
Tag Archives: Parkinson's
Be your own best advocate…
For years I worked as a Social Worker and I often had to advocate for my patients and their families in various circumstances. When people find themselves needing significant health support and hospitalisation, they can feel that they have very little choice. It has always been important in my eyes to advocate for the choicesContinue reading “Be your own best advocate…”
How are you doing?
For those of us that have a diagnosis of Parkinson’s, I hope that for the most part we are supported by our GP’s, our specialists and other health professionals we are involved with. We need to have our medications reviewed from time to time and ensure that as we progress we have all that weContinue reading “How are you doing?”
Responding to need
I have read many posts on a Facebook page that I belong to about how to get help for a family member with Parkinson’s. The first thing to do is make sure that the person with Parkinson’s or PWP goes to see their GP, discuss what the person’s challenges are and request an assessment toContinue reading “Responding to need”
A brave and inspiring soul…
I have just been reading a short article written by someone who has a diagnosis of cancer and now only has weeks to live. She is so brave sharing her story and I have to admire how accepting she is of her prognosis. She is doing things like knitting her nephews rugs, so that theyContinue reading “A brave and inspiring soul…”
I’m getting very competitive!
I am trying very hard to have a balanced approach to my Parkinson’s management. I will admit there are areas where I am not so good and the main one is voice practice. I have tried to combine it with riding my Assault Bike, so that I exercise my voice and my body at theContinue reading “I’m getting very competitive!”
To tell or not to tell… Why, Who, What, Not and Where… Or you could ask!
Big heading tonight! I am sure there are many differing opinions on the topic of telling those in our lives about our diagnosis. We all do what feels right for us and I acknowledge that what is right for me, is perhaps not right for everyone. Recognising that we as individuals have different thoughts andContinue reading “To tell or not to tell… Why, Who, What, Not and Where… Or you could ask!”
Getting out and about…
I have had a lot of time at home by myself while recovering from my operation. Especially in the beginning, when I could not get into a car to go anywhere, that was a bit of an issue. Luckily, I can now not only get in and out of a car but also drive. IContinue reading “Getting out and about…”
Living our own truth
I read with interest a post on the Facebook page that I follow from one of the administrators. The writer was commenting on the unique experiences of this condition that we all have. She had put a lot of thought into this post and went on to say that when posting she always writes about what worksContinue reading “Living our own truth”
A life to be proud of?
There is an old saying, “Pride goeth before a fall” which I guess infers that having pride in yourself is a bad thing? I’ve been thinking about the subject of pride for a few days now and trying to get my head straight about what I am thinking and why. It is sometimes challenging to get theContinue reading “A life to be proud of?”
My journey with Parkinsons 