How does anyone ‘do life’ if there is an almost total lack of certainty? Add to that a healthy dose of pain and – it seems – as I said to someone this morning ‘every pain medication known to mankind’ life feels a bit tough at the moment. That’s the understatement of the year, that’sContinue reading “A world of pain and uncertainty”
Tag Archives: pain
A hidden issue – how can I be seen?
I’ve written before in this blog about hidden disabilities and how challenging it can be to not only live with them, but for others to understand. I often use the analogy of a person in a wheelchair at the bottom of some steps. No reasonable person would expect them to be able to get upContinue reading “A hidden issue – how can I be seen?”
Tears for breakfast
Yesterday I woke up feeling out of sorts. I wasn’t aware that I was going to turn into a tearful mess. But I did! One minute I’m talking to my husband, the next I am in floods of tears. I know what is behind it, the uncertainty of how long I am going to haveContinue reading “Tears for breakfast”
I miss being part of a team….
My husband and I have been a strong team, just the two of us ever since we met. We know what we each need to be happy and we try very much to support each other to get those things that support us. It has been us against the world at times and more frequentlyContinue reading “I miss being part of a team….”
Absence makes the heart grow fonder and all that stuff…
Life at the moment is as ever complicated. I am trying to keep up with my blog, try to work out how to record, edit and get a podcast finished and cope with health issues. Life is full of ‘stuff’ that I am trying to do and I find that there is not much thatContinue reading “Absence makes the heart grow fonder and all that stuff…”
The good and the not so good of medications
For nearly four months now I have been struggling with at times excruciating pain in my left leg predominantly and at times in my left. I have been on a cocktail of drugs for the whole period and nothing really put a dent in the pain. Apparently, the source of the pain is in myContinue reading “The good and the not so good of medications”
It takes two…
Thought I would start with something different today! Yes, it takes two or three or more, whatever you have available to you. The point of this is that it will be a rarity that anyone is completely alone in this journey. Even if you don’t have a partner, or children or siblings there will beContinue reading “It takes two…”
Life is full of challenges…
I have always been someone who has had a lot of health challenges in their life. From minor to major and everything in between, I seem to have more than my fair share at times. Of course, the main health condition – and the one that spawned this Blog – is Parkinson’s. But there areContinue reading “Life is full of challenges…”
Thoughts on disability and accessibility
I am struggling at the moment with my limited mobility and the need to use aids. I had lunch with my adult daughter this week and it was the first time we had really seen each other since I started to have the issues which lead me to needing a walking aid. Right from theContinue reading “Thoughts on disability and accessibility”
It would be easy to give up!
Since the beginning of August I have had permanent pain caused by my back. The pain, however, is primarily in my left leg. At the beginning and for some time, I would have described the pain as excruciating. It has had some improvement but has only really improved to the extremely painful status at timesContinue reading “It would be easy to give up!”
My journey with Parkinsons 