The embarrassing stuff…

Last night I was looking at a Facebook Page that I follow relating to Parkinson’s. It has been a source of many topics over the years when writing my blog and subsequently in doing my podcasts. I found a post by a woman called Donna Parkhurst, who has Parkinson’s and also has a podcast comingContinue reading “The embarrassing stuff…”

It is better to know

Today I was watching one of the series I follow on Netflix. I don’t know what I would do without Netflix and other streaming services, especially when I have been recovering from one of yet another surgeries. When you are immobile or have limited and painful mobility, any distraction that doesn’t hurt is invaluable! Anyway,Continue reading “It is better to know”

“So you’ve got Parkinson’s the poem….”

So you’ve got Parkinson’sSo you’ve got Parkinson’s what does it meanAre you the person that you’ve always been?So you’ve got Parkinson’s who do you tellOnly those closest who know you so well?So you’ve got Parkinson’s what have you leftHave dreams all been lost and so you’re bereft?So you’ve got Parkinson’s a specialist saidWhat are youContinue reading ““So you’ve got Parkinson’s the poem….””

Recovery or regression?

At the moment I am away for a few days with my husband. After four years of pain both from my knee and my back it is sometimes difficult to figure out what causes each new bout of pain. We were going for a gentle bush walk and I was feeling very tired right fromContinue reading “Recovery or regression?”

A Health Passport and other information…

One of the things about being a Social Worker, is that a good Social Worker is skilled at first getting information from a client or patient. This is important because the Social Worker can then ensure that they provide information and support in relation to that person’s individual needs and preferences. When a person isContinue reading “A Health Passport and other information…”

Do I want to know or do I not?

It sometimes seems to me when you have a ‘condition’ – I refuse to think of myself as ‘diseased’ – that reference to that condition crops up everywhere. Of course with social media being what it is and clever little algorithms (or whatever) stalk you and this affects what comes into your feed. While IContinue reading “Do I want to know or do I not?”

There’s a fine line…

I have never been what you might consider by any stretch of the imagination, to be athletic. I have never been particularly good at sports. The only two things that could be considered sporting pursuits that I have participated in have seen hockey – at school – and bowls. I did go to the gymContinue reading “There’s a fine line…”

Tough times and tough decisions…

I was reading a post that was on a Facebook page for people with Parkinson’s and their carers/family/supporters. It is a very useful page, because it gives different perspectives and often the discussions are really useful, those of us “experts” on Parkinson’s can share our experiences and help each other. You will note that IContinue reading “Tough times and tough decisions…”

It’s been a bit of an up and down week this week!

This week has certainly been a busy week, as bowls starts to really get going. This will be my first proper season, where I get to play in inter-club games. They are on a Wednesday morning and a Saturday morning and we are expected to put up our hand for both. Add on to thatContinue reading “It’s been a bit of an up and down week this week!”

Feeling frustrated…

Yesterday was one of those days, where so many things outside of my control threatened to upset my equilibrium (big word for the morning) and send me into a mental tail spin. It started with my regular swimming session at the local pool. I am still trying to get the hang of doing freestyle againContinue reading “Feeling frustrated…”