Finding the right help and information

I have a friend who has had some significant symptoms recently, with sharp pains in her head and at times she can’t get out of bed for days. She has been to her GP and is awaiting a scan to try to determine what is happening for her. She is waiting to see a NeurologistContinue reading “Finding the right help and information”

Dreaded Dentist!

Well, today I started off my Friday with a trip to the Dentist. My second dental appointment in as many weeks. I must say it will never be the highlight of the week! Ever since I was a young child I have dreaded going to the Dentist. I remember when we saw the school Dental Nurses, that they wereContinue reading “Dreaded Dentist!”

Weight gain in Parkinson’s

I have been diagnosed now for about 3.5 years. I am doing well and medications seem to be keeping my symptoms under control.  There is one issue that I really do need to be mindful of and that is my weight. Having seen my parents with Parkinson’s go through physical and psychological changes, I think has veryContinue reading “Weight gain in Parkinson’s”

Living our own truth

I read with interest a post on the Facebook page that I follow from one of the administrators. The writer was commenting on the unique experiences of this condition that we all have. She had put a lot of thought into this post and went on to say that when posting she always writes about what worksContinue reading “Living our own truth”

What is the smart option for you?

Tonight I attended the first monthly support group for 2024. We are a bunch of early stage people with Parkinson’s and all under 65. Partners are welcome too and it is nice to see them tapping into the group as a support. We talk about many things at this group and while it is a relaxed typeContinue reading “What is the smart option for you?”

My needy knee…

It is now just on six weeks since I had my knee replacement surgery on 29/11/23. I am told that I am doing well by my husband, my surgeon and my physiotherapist. However, for me – as ever impatient to get on – it feels like slow process and that it is taking forever. This experience has certainlyContinue reading “My needy knee…”

Learning from the ‘experts’ on Parkinson’s

This journey that we find ourselves on is one in which we are constantly learning. Constantly seeking the knowledge to understand this condition, what it means for each of us and for the people who are in supporting roles in our lives. When I say the word ‘expert’ many would find themselves thinking about those professionsContinue reading “Learning from the ‘experts’ on Parkinson’s”

No-one can help me till I help myself!

I have frankly admitted in recent times that life has been more than a bit of a struggle at the moment. Health issues – not related to Parkies – especially the dreaded knee, have been getting on top of me. While I don’t consider myself controlling, I do like to be in control of myContinue reading “No-one can help me till I help myself!”

Where do you go for help?

I was reading a few posts on a Facebook Page I am a member of for people with Parkinson’s. The person concerned was asking for someone who could act as an advocate for them to try to navigate their way through funding information. They also wanted to know about requirements for supports for at homeContinue reading “Where do you go for help?”

Accident vs Medical Event…

It is difficult sometimes to do the work that I do and to see the huge impact that a major health event has on the patients and families I do my best to support. Most of the people who are admitted to the Ward are under 65 years of age. There are a few exceptions,Continue reading “Accident vs Medical Event…”