Be your own best advocate…

For years I worked as a Social Worker and I often had to advocate for my patients and their families in various circumstances. When people find themselves needing significant health support and hospitalisation, they can feel that they have very little choice. It has always been important in my eyes to advocate for the choicesContinue reading “Be your own best advocate…”

How are you doing?

For those of us that have a diagnosis of Parkinson’s, I hope that for the most part we are supported by our GP’s, our specialists and other health professionals we are involved with. We need to have our medications reviewed from time to time and ensure that as we progress we have all that weContinue reading “How are you doing?”

A brave and inspiring soul…

I have just been reading a short article written by someone who has a diagnosis of cancer and now only has weeks to live. She is so brave sharing her story and I have to admire how accepting she is of her prognosis. She is doing things like knitting her nephews rugs, so that theyContinue reading “A brave and inspiring soul…”

Balance, it’s all about balance…

Sometimes it is difficult to know how much, or indeed how little, you should do in the way of exercise. I am a firm believer in the fact that often we need to work past the pain to make the gains. No pain, no gain, right! That is all well and good, but how doContinue reading “Balance, it’s all about balance…”

I’m getting very competitive!

I am trying very hard to have a balanced approach to my Parkinson’s management. I will admit there are areas where I am not so good and the main one is voice practice. I have tried to combine it with riding my Assault Bike, so that I exercise my voice and my body at theContinue reading “I’m getting very competitive!”

Coming to a crossroads…

Life is complicated. Even without Parkies. But with Parkies, it is even more so. There is a lot to weigh up when it comes to decisions about life for those of us with the diagnosis and obviously for our supporters. If, like me, you are part of a couple you will be acutely aware thatContinue reading “Coming to a crossroads…”

Learning from the ‘experts’ on Parkinson’s

This journey that we find ourselves on is one in which we are constantly learning. Constantly seeking the knowledge to understand this condition, what it means for each of us and for the people who are in supporting roles in our lives. When I say the word ‘expert’ many would find themselves thinking about those professionsContinue reading “Learning from the ‘experts’ on Parkinson’s”

Learning my limits …

Well, it is just over a week since I had my knee replacement surgery. I was told that it was one of the biggest and most painful operations you could have. However, I seem to have been managing well and the pain has not seemed too bad. The problem is, I think, that you canContinue reading “Learning my limits …”

We’re there for each other… no man (or woman) is an island!

Time for some positivity from me. I’m afraid I’ve been a bit short in that department in these blog posts. Like I said before I have allowed my knee issues to almost completely take over my thoughts. It has not been helpful, but also has been a difficult thing to break out of. I haveContinue reading “We’re there for each other… no man (or woman) is an island!”

Getting back into life…

It’s been about two weeks now since I had the misfortune of throwing myself onto the ground from my racey red e-bike. It is certainly not something I ever wish to do again! I have given myself some time for the bruising to heal and so have not gone to the gym, gone to AquarobicsContinue reading “Getting back into life…”