If only we had a crystal ball…

Life would be so much easier perhaps if we knew what to expect, but none of us has a crystal ball to be able to see what our future holds. Perhaps that is for the best. Today, I had a discussion with someone I have worked with for a few years now and who isContinue reading “If only we had a crystal ball…”

Pity Party over….

I am pleased to report that I am in a much better frame of mind tonight. I have been to the gym and had a good workout and managed to do my whole programme with not too much trouble. I think last night I was just over tired and this impacted my mood. That said,Continue reading “Pity Party over….”

Exercise and commitment, sometimes it’s all a bit much!

So, I came home from work today and started to look at what exercise options I need to get into. As I have said on many occasions ‘exercise is medicine’. But tonight that medicine feels hard to swallow. The responsibility for giving me the best future for the longest time, feels like it doesn’t belongContinue reading “Exercise and commitment, sometimes it’s all a bit much!”

Poetry to order?

Those of you that follow my Blog will have noticed I have posted some of my poetry recently. My husband – and biggest fan – has often said that I should publish a book of my poetry. So, one day after one of these conversations recently, I contacted a publisher to enquire how to goContinue reading “Poetry to order?”

What this condition has taught me and how it makes me better at what I do…

Wow! That’s a long title… I had a meeting yesterday with my boss and we talked about various aspects of my role as a Social Worker. One of those aspects is that I need to do a certain amount of ‘professional development’ to maintain my professional registration each year. I asked if I could useContinue reading “What this condition has taught me and how it makes me better at what I do…”

A better person… trying to find balance in life

I had lunch this week with my daughter, my youngest child and mother of my three grand-daughters. We started to talk about my Parkinson’s and how I was doing and generally how it has affected me. Life is busy. I work four days a week in a busy and stressful job. I have a husbandContinue reading “A better person… trying to find balance in life”

Being me… being you

This week my two oldest grand-children turn 13. If you haven’t guessed from the opening sentence, they are twins. They may be twins, but they are very much individuals. One of them goes with the flow, enjoys attention and seems quite relaxed about life, the other has never enjoyed being the focus of attention, ‘Oh,Continue reading “Being me… being you”

Flying in the face of convention…

Today I wore odd earrings. I didn’t mean to, but I noticed half way through the day that I had put on two totally different earrings. I know years ago I seemed to lose one of a pair of earrings and decided that rather than not wearing the remaining earrings I would mix and matchContinue reading “Flying in the face of convention…”

Trying not to focus on ‘the end game’

I saw this posted on a Facebook page this morning for people with Parkinson’s and those that support them. It felt raw and very sad for that person to post this note to his or her Parkinson’s community. As someone also with the diagnosis, I absolutely get what they are saying. How could I not?Continue reading “Trying not to focus on ‘the end game’”

A sense of unreality

I am regularly plagued by a sense of unreality. That I don’t really have Parkinson’s. That any symptoms I might have can be explained away by overwork, tiredness, age, anything but Parkinson’s. My symptoms are pretty mild. I can walk without shuffling. My balance is pretty good. My reduction in energy levels explained away byContinue reading “A sense of unreality”