In my last post, I talked about the value of being with others who have similar experience that we can connect to. I also spoke about a conference my husband and I attended in Rotorua a couple of years ago. It was shortly after I was diagnosed and while I had some hesitation about going,Continue reading “We are the experts! Parkies People”
Author Archives: kiwipommysue
Finding my tribe…
I often say that there is nothing like a shared experience to bring people together. I know when I was a very young first time Mum – at age 20 – that getting together with other Mums and sharing our experiences and things that worked for us, was really useful. You knew that others wereContinue reading “Finding my tribe…”
I’ve recovered my equilibrium… (big word for a Sunday!)
Well, the last post I did I was a bit of a Negative Nelly. Sorry to all you Nellies out there! Or rather a Sad Sack Sue! Sometimes it just takes having a bit of an offload to actually start to feel a bit better about life. Sure, Parkies is not the hand I wouldContinue reading “I’ve recovered my equilibrium… (big word for a Sunday!)”
I am so over being in pain…
I wish there was someone I could complain to and get a refund on my body!! Like when you purchase an item from a store and it is faulty. Take that thing back and get your money back! Right now, I’m feeling my body is not fit for purpose. Legs are for walking on surely?Continue reading “I am so over being in pain…”
Parkies makes me a better person and a better Social Worker!
During a discussion group this week, I was using my diagnosis as an example of something that I need to be mindful of in my work. I was asked, ‘Do you find it difficult working with people with similar conditions? Or is it helpful?’ I didn’t have to think about it too long at allContinue reading “Parkies makes me a better person and a better Social Worker!”
‘Shouldisms’ and Self-care
The use of language is a powerful thing. The words we use can create negative or positive thoughts and feelings. I have always hated the word ‘should’, to me it is heavily value laden with the expectations of others. We then take on board and often beat ourselves up for not achieving what they andContinue reading “‘Shouldisms’ and Self-care”
If I had a time machine…
Or, If I had a crystal ball…. It’s hard sometimes to find a title for my posts. Often there is a mad jumble of thoughts and emotions when I sit down to write and to make sense of it can be a challenge. I had my grandchildren for the weekend, and we have had aContinue reading “If I had a time machine…”
What’s the worst thing that could happen?
When you look into Parkinson’s on ‘Dr Google’ there are so many ways that this condition can affect us. It is mind boggling how many things can happen. There is pain, there are tremors, mobility and balance issues and of course cognitive effects. Of all the things that come with it, there is one thingContinue reading “What’s the worst thing that could happen?”
One Woman’s treasures….
There is an old saying, ‘One man’s trash is another man’s treasure’ and so it goes for women too! In the weekend we moved some furniture around in our lounge and one of them was a rimu display cabinet in which I have displayed some of the treasures I have gathered over the years. AsContinue reading “One Woman’s treasures….”
Quality time and memories
This weekend was one of the rare weekends when my husband and I have the whole three day weekend together. With him doing shift work, it doesn’t happen that often, so we decided to go into the city and stay the night and go out for dinner. Living a bit further out of town theseContinue reading “Quality time and memories”
My journey with Parkinsons 