Thought I would start with something different today! Yes, it takes two or three or more, whatever you have available to you. The point of this is that it will be a rarity that anyone is completely alone in this journey. Even if you don’t have a partner, or children or siblings there will beContinue reading “It takes two…”
Author Archives: kiwipommysue
To tell or not to tell that is the question!
One of the first discussions my husband and I had following my diagnosis, was how soon to tell people, especially at work. Being a very private person, his take was “you don’t have to rush into telling people”. I thought about this for a nano-second – yes, I can be very decisive when I wantContinue reading “To tell or not to tell that is the question!”
Life is full of challenges…
I have always been someone who has had a lot of health challenges in their life. From minor to major and everything in between, I seem to have more than my fair share at times. Of course, the main health condition – and the one that spawned this Blog – is Parkinson’s. But there areContinue reading “Life is full of challenges…”
Thoughts on disability and accessibility
I am struggling at the moment with my limited mobility and the need to use aids. I had lunch with my adult daughter this week and it was the first time we had really seen each other since I started to have the issues which lead me to needing a walking aid. Right from theContinue reading “Thoughts on disability and accessibility”
Road trip rambling… Have a snack rather than a banquet..
Sometimes when you need a break, it doesn’t need to be a big deal that requires a plane ride. Or for that matter needing a passport. My husband and I worked out years ago that we were better to have several short breaks than waiting for a long holiday. So, we rarely took two weeksContinue reading “Road trip rambling… Have a snack rather than a banquet..”
A different perspective
My lovely husband and I have just come back from a couple of days away in Akaroa. It is the first time we have tried to go away since my temporary change in mobility. We took with us a hired wheelchair and my walker I have been using for the past few months. While weContinue reading “A different perspective”
It would be easy to give up!
Since the beginning of August I have had permanent pain caused by my back. The pain, however, is primarily in my left leg. At the beginning and for some time, I would have described the pain as excruciating. It has had some improvement but has only really improved to the extremely painful status at timesContinue reading “It would be easy to give up!”
Parkies, life and grief
As with any other person, there is much more to my life than just the diagnosis of Parkinson’s. I carry with me a grief that no mother should have to face. The death of my oldest son, suddenly and far too soon at just short of his 39th birthday. One thing that I find comfortContinue reading “Parkies, life and grief”
Loss and laughter
Yesterday being 4/10 was the anniversary of my eldest son’s passing just before his 39th birthday. I have my youngest grand-daughter staying with me at the moment, so her Mum came to spend the morning with us. Adam was very close to his sister and her three daughters and because they all lived in ChristchurchContinue reading “Loss and laughter”
Accessible? I think not!
Just a quick one on the subject of accessibility. I had booked a session with an acupuncture therapist this week. My husband took me and the first thing we encountered was a heavy door that opened outwards. That would be difficult to open by myself. There was a sticker stating it was an accessible building.Continue reading “Accessible? I think not!”
My journey with Parkinsons 