So you’ve got Parkinson’sSo you’ve got Parkinson’s what does it meanAre you the person that you’ve always been?So you’ve got Parkinson’s who do you tellOnly those closest who know you so well?So you’ve got Parkinson’s what have you leftHave dreams all been lost and so you’re bereft?So you’ve got Parkinson’s a specialist saidWhat are youContinue reading ““So you’ve got Parkinson’s the poem….””
Tag Archives: Parkinson's
“So you’ve got Parkinson’s” – some thoughts and a poem
So you’ve got Parkinson’s. Does that mean that everything else in your life must take a back seat and let this beast of a condition take over? No way, I say! Parkinson’s is like the freebee you get with something you wanted to buy. You take it, cos maybe you feel you ought to, butContinue reading ““So you’ve got Parkinson’s” – some thoughts and a poem”
Do I want to know or do I not?
It sometimes seems to me when you have a ‘condition’ – I refuse to think of myself as ‘diseased’ – that reference to that condition crops up everywhere. Of course with social media being what it is and clever little algorithms (or whatever) stalk you and this affects what comes into your feed. While IContinue reading “Do I want to know or do I not?”
Tough times and tough decisions…
I was reading a post that was on a Facebook page for people with Parkinson’s and their carers/family/supporters. It is a very useful page, because it gives different perspectives and often the discussions are really useful, those of us “experts” on Parkinson’s can share our experiences and help each other. You will note that IContinue reading “Tough times and tough decisions…”
Feeling ‘Parkies’ today…
In my life at the moment, for the most part I just carry on with my life and am very much enjoying my retirement again. I am enjoying the various activities I have chosen and most days I have something planned that I enjoy doing. I can therefore, just get on with things and notContinue reading “Feeling ‘Parkies’ today…”
Feeling lucky to have Parkinson’s
So today I was reminded to count my blessings. , The title of this podcast is Feeling Lucky to Have Parkinson’s, and that is, no doubt going to seem like a weird thing to, to say to actually celebrate having Parkinson’s. But I’ll tell you what happened today. So my husband and I decidedContinue reading “Feeling lucky to have Parkinson’s”
Forgetting….
When I open up to people about my Parkinson’s – which I often do early on – one of the first things they tend to say is that I don’t look like someone with Parkinson’s. They also say that they don’t notice any issues with standing, walking or tremors. All of the above is true.Continue reading “Forgetting….”
Ability vs Disability
As anyone who follows my blog will know, as I recovered first from my knee replacement surgery and then from my back operation – which was a major – my primary aim has always been to get back to bowls. I feel lucky to be able to now play bowls again and I was ableContinue reading “Ability vs Disability”
Have I been offensive?
I have been looking at a comment that has been made on my blog about the term ‘Parkies’ which is in the title of my Blog and appears from time to time in entries and in my podcasts. The comment was along the lines that ‘Parkies’ has been – and still may be for someContinue reading “Have I been offensive?”
Priorities – What do you focus on?
Yesterday a short video clip showed up on a Facebook Page for people with Parkinson’s and those that support them. It was a video of a husband whose wife had been diagnosed some 20 years ago and how he had spent those 20 years. He talked about how he had spent a significant amount ofContinue reading “Priorities – What do you focus on?”
My journey with Parkinsons 