I have a surgery date and some learnings

Finally, I have a date for my surgery. It will be on 3/2 with a pre-op appointment prior next week. That is 11 days to my surgery and counting. I know there will be a six to eight week recovery period, but I have always coped better with recovery pain than pain prior to anContinue reading “I have a surgery date and some learnings”

A world of pain and uncertainty

How does anyone ‘do life’ if there is an almost total lack of certainty? Add to that a healthy dose of pain and – it seems – as I said to someone this morning ‘every pain medication known to mankind’ life feels a bit tough at the moment. That’s the understatement of the year, that’sContinue reading “A world of pain and uncertainty”

There are no experts in Parkinson’s – Oh, yes there are!

Let’s start this post with a little exercise. Go and look in the nearest mirror and what do you see? Do you see your tired eyes or your hair that needs cutting because you haven’t had time. Do you see all that you see as defects and that is maybe all you are accustomed toContinue reading “There are no experts in Parkinson’s – Oh, yes there are!”

Perfect imperfection and Parkinsons

For those of us with a condition like Parkinson’s we know that there will be a gradual worsening as we go along. There are many facets to Parkinsons and every person experiencing it can be quite different in how the condition manifests itself. While there is no cure for Parkinsons – as yet – thereContinue reading “Perfect imperfection and Parkinsons”

What happens after??

Many years ago I worked as a Social Worker in the community with people with dementia and their partners/husbands/wives and other family members who needed support. There were groups available for people in the early stages of dementia, support groups for family members and volunteers to help support the carers and people with dementia. AContinue reading “What happens after??”

Tis the season for family and forgiveness

I don’t know if other people do this very much, but today I have gone through my Facebook friends and my contacts on my phone and reviewed whether they are still friends that I am in contact with. If I don’t feel like we are in contact anymore, I have culled them. The interesting thingContinue reading “Tis the season for family and forgiveness”

Pushing my poor tired brain…

I have been pushing my poor tired brain recently in a number of ways. I continue to write this blog when I can. Having a two-hour morphine induced ‘Nanna Nap’ in the middle of the day, cuts into my day quite a lot. I also want to spend time with my husband when he isn’tContinue reading “Pushing my poor tired brain…”

The familiar, the ordinary

Generally speaking, the familiar or the ordinary in our lives gives us a feeling of comfort or safety. A known quantity or experience to be relied upon. However, there are times when the familiar or the ordinary or what has become so, is not a good or safe thing. My second marriage became an unsafeContinue reading “The familiar, the ordinary”

I miss being part of a team….

My husband and I have been a strong team, just the two of us ever since we met. We know what we each need to be happy and we try very much to support each other to get those things that support us. It has been us against the world at times and more frequentlyContinue reading “I miss being part of a team….”

The good and the not so good of medications

For nearly four months now I have been struggling with at times excruciating pain in my left leg predominantly and at times in my left. I have been on a cocktail of drugs for the whole period and nothing really put a dent in the pain. Apparently, the source of the pain is in myContinue reading “The good and the not so good of medications”