I had the privilege of interviewing Kirstie, a Speech Language Therapist that I had worked with as a colleague and also benefitted by her expertise as a patient. ‘Speechies’ as they are affectionately referred to by those of us that work or worked on the ward, do incredible work with patients. They truly can makeContinue reading “Speech Language Therapy and Parkinson’s – An interview”
Category Archives: Self learning and growth
Comorbidities Confuse Cause or cause confusion!
When you have a bunch of different health issues – ie. Comorbidities – it is sometimes difficult to know the cause of a new ache or pain and/or who to talk to about it! The risk of course is that we just shrug our shoulders and think it must be related to Parkinson’s when itContinue reading “Comorbidities Confuse Cause or cause confusion!”
Tell your story before it is lost – podcast
Here is a longer look at the topic of telling our stories. How many of us have regretted not asking more about our family history when we had the chance? Although for us, our lives might have seemed too ordinary for anyone to be interested in, for our children and grandchildren they may love toContinue reading “Tell your story before it is lost – podcast”
Hold onto hope … never say never!
In 2021 we moved into our new home together with this little lady and her sister Gidget. Unfortunately, at just two weeks in Milly got out and we have never seen her since. We did all the things you do, put notices in all the lost pets options online. Rang vets, walked for miles callingContinue reading “Hold onto hope … never say never!”
Keeping up with language and meaning…
Even if we pride ourselves on being a good communicator, there can be a barrier to communication with those not of our era. Much as we might love each other, it can be difficult to understand due to use of words that are in the current time in which we find ourselves. Teenagers and childrenContinue reading “Keeping up with language and meaning…”
Don’t wrap me in cotton wool…
Even the most caring of people – who want to protect us – don’t always get it right. Neither do we. However, with a condition which will one day potentially take so much away from us, we need to be trusted to decide what is safe or not to do. This may take some negotiationContinue reading “Don’t wrap me in cotton wool…”
Boom and Bust…
Over the past 20+ years I have been with my husband, I have had many operations. Finger joint replacements – yes, that is possible – I didn’t know you could until I was offered it. This was because of my arthritis. Four fingers in total. A shoulder operation for a frozen shoulder. Full knee replacementContinue reading “Boom and Bust…”
To medicate or not to medicate that is the question…
If you are in the early stages of Parkies and even those a few years down the track, there seems to be a lot of variation in when or if people have commenced any sort of medication. This podcast talks about my choice which was to medicate immediately on the advice of my very experiencedContinue reading “To medicate or not to medicate that is the question…”
Let’s talk about memory, dementia and ski holidays
Memory takes many forms, from the mundane to the crucial – like remembering your meds – to those with an emotional overlay. My podcast is about that and so much more. I hope you will all soon be planning your ‘ski’ holidays…
Seeing your GP, Specialist or Physio/Allied Health
As we go down this road with Parkinson’s as the unwelcome hitchhiker that they are, we need to develop strategies to make the most of opportunities for help. One of the situations that it is important that we get right, is when we find ourselves in front of a medical professional or allied health. IContinue reading “Seeing your GP, Specialist or Physio/Allied Health”
My journey with Parkinsons 