I miss being part of a team….

My husband and I have been a strong team, just the two of us ever since we met. We know what we each need to be happy and we try very much to support each other to get those things that support us. It has been us against the world at times and more frequentlyContinue reading “I miss being part of a team….”

Giving thanks

Even though in New Zealand we do not celebrate Thanksgiving, we can all probably do with finding a moment, an hour, a day to give thanks for the things that we do have to be grateful for in our lives. I know recently, for the past four months in particular, I have struggled to findContinue reading “Giving thanks”

Absence makes the heart grow fonder and all that stuff…

Life at the moment is as ever complicated. I am trying to keep up with my blog, try to work out how to record, edit and get a podcast finished and cope with health issues. Life is full of ‘stuff’ that I am trying to do and I find that there is not much thatContinue reading “Absence makes the heart grow fonder and all that stuff…”

You don’t know what you don’t know!

Previously having worked as a Social Worker for 20 years, you learn the tricks and where and how to get information. I guess you kind of forget that other people are not as aware of the things that you tend to take for granted. In New Zealand we have a benefit system which is administeredContinue reading “You don’t know what you don’t know!”

Stools are not just things you sit on….. (don’t read this when eating your dinner)

As I have said before, I am on a collection of medications the like of which I have never been on before. Most of them are designed either to ease my pain or to counteract the side effects of those pain killers. Some of them can really block you up, so it is important toContinue reading “Stools are not just things you sit on….. (don’t read this when eating your dinner)”

The good and the not so good of medications

For nearly four months now I have been struggling with at times excruciating pain in my left leg predominantly and at times in my left. I have been on a cocktail of drugs for the whole period and nothing really put a dent in the pain. Apparently, the source of the pain is in myContinue reading “The good and the not so good of medications”

It takes two…

Thought I would start with something different today! Yes, it takes two or three or more, whatever you have available to you. The point of this is that it will be a rarity that anyone is completely alone in this journey. Even if you don’t have a partner, or children or siblings there will beContinue reading “It takes two…”

To tell or not to tell that is the question!

One of the first discussions my husband and I had following my diagnosis, was how soon to tell people, especially at work.  Being a very private person, his take was “you don’t have to rush into telling people”.  I thought about this for a nano-second – yes, I can be very decisive when I wantContinue reading “To tell or not to tell that is the question!”

Life is full of challenges…

I have always been someone who has had a lot of health challenges in their life. From minor to major and everything in between, I seem to have more than my fair share at times. Of course, the main health condition – and the one that spawned this Blog – is Parkinson’s. But there areContinue reading “Life is full of challenges…”

Thoughts on disability and accessibility

I am struggling at the moment with my limited mobility and the need to use aids. I had lunch with my adult daughter this week and it was the first time we had really seen each other since I started to have the issues which lead me to needing a walking aid. Right from theContinue reading “Thoughts on disability and accessibility”