For nearly four months now I have been struggling with at times excruciating pain in my left leg predominantly and at times in my left. I have been on a cocktail of drugs for the whole period and nothing really put a dent in the pain. Apparently, the source of the pain is in myContinue reading “The good and the not so good of medications”
Category Archives: self-care
It takes two…
Thought I would start with something different today! Yes, it takes two or three or more, whatever you have available to you. The point of this is that it will be a rarity that anyone is completely alone in this journey. Even if you don’t have a partner, or children or siblings there will beContinue reading “It takes two…”
To tell or not to tell that is the question!
One of the first discussions my husband and I had following my diagnosis, was how soon to tell people, especially at work. Being a very private person, his take was “you don’t have to rush into telling people”. I thought about this for a nano-second – yes, I can be very decisive when I wantContinue reading “To tell or not to tell that is the question!”
Life is full of challenges…
I have always been someone who has had a lot of health challenges in their life. From minor to major and everything in between, I seem to have more than my fair share at times. Of course, the main health condition – and the one that spawned this Blog – is Parkinson’s. But there areContinue reading “Life is full of challenges…”
Thoughts on disability and accessibility
I am struggling at the moment with my limited mobility and the need to use aids. I had lunch with my adult daughter this week and it was the first time we had really seen each other since I started to have the issues which lead me to needing a walking aid. Right from theContinue reading “Thoughts on disability and accessibility”
Road trip rambling… Have a snack rather than a banquet..
Sometimes when you need a break, it doesn’t need to be a big deal that requires a plane ride. Or for that matter needing a passport. My husband and I worked out years ago that we were better to have several short breaks than waiting for a long holiday. So, we rarely took two weeksContinue reading “Road trip rambling… Have a snack rather than a banquet..”
A different perspective
My lovely husband and I have just come back from a couple of days away in Akaroa. It is the first time we have tried to go away since my temporary change in mobility. We took with us a hired wheelchair and my walker I have been using for the past few months. While weContinue reading “A different perspective”
It would be easy to give up!
Since the beginning of August I have had permanent pain caused by my back. The pain, however, is primarily in my left leg. At the beginning and for some time, I would have described the pain as excruciating. It has had some improvement but has only really improved to the extremely painful status at timesContinue reading “It would be easy to give up!”
Words are important
I know there will be changes to my body in the future. I think I am prepared for that. The thing that I am not looking forward to, is that one day my voice will change and my words both spoken and written may leave me. I have had some symptoms which apparently can beContinue reading “Words are important”
The visit from the medical alarm rep…
Well, I am now finding myself on the other side of a conversation and that is interesting. I hear what people are saying to me and hear the echo of my own voice in what they are saying. Today we were visited by the rep from one of the alarm companies who I worked withContinue reading “The visit from the medical alarm rep…”
My journey with Parkinsons 