This podcast is about the challenges of supporting someone with Parkinson’s. For the person with Parkinson’s themselves to know what they need is difficult enough, but being able to convey that to others can be a real challenge. On the one hand, we want to maintain independence, on the other hand we may get upsetContinue reading “I pity those who support me – Podcast”
Category Archives: self-care
Which is caused by my back and what is my Parkinson’s?
Although I have retired as of 9/5/2024, I still feel that my Parkinson’s at this stage is not obvious to many around me. I’m not sure sometimes whether that is a good thing or a bad thing. It’s a good thing I think in many ways, because I don’t want the world at large toContinue reading “Which is caused by my back and what is my Parkinson’s?”
Pods and Blogs and odds and sods…
As the title might suggest, this is a blog post about many things. Firstly, Podcasts or ‘Pods’ for short. I am enjoying doing the podcasts more than I thought I would. I did my first interview via ZOOM yesterday and posted it on here this morning. Call me biased, but I think they came outContinue reading “Pods and Blogs and odds and sods…”
Tap, tap, tapping away…
Every now and again, I check in with myself and try to analyze whether there are any new symptoms or increase in symptoms already present. At the moment, I think I am still functioning reasonably well in most areas, but there have been a few things that I have noticed. Those are the main thingsContinue reading “Tap, tap, tapping away…”
Perfect imperfection and Parkinsons – Podcast Episode 18
Some may strive for perfection, but for me, that is aiming too high. I try to be the best that I can be in the moment. My best can change minute to minute, hour by hour or day by day. What is important is to be kind to ourselves and not put pressure on ourselvesContinue reading “Perfect imperfection and Parkinsons – Podcast Episode 18”
Perfect imperfection and Parkinsons
For those of us with a condition like Parkinson’s we know that there will be a gradual worsening as we go along. There are many facets to Parkinsons and every person experiencing it can be quite different in how the condition manifests itself. While there is no cure for Parkinsons – as yet – thereContinue reading “Perfect imperfection and Parkinsons”
What happens after??
Many years ago I worked as a Social Worker in the community with people with dementia and their partners/husbands/wives and other family members who needed support. There were groups available for people in the early stages of dementia, support groups for family members and volunteers to help support the carers and people with dementia. AContinue reading “What happens after??”
Merry Christmas from me to you – A wee Christmas poem.
ChristmasC is for Children who make this day complete H is for Hungry may you always have something to eat R is for Remember that you are truly unique I is for I know that you don’t always get what you seekS is for Special because there’s only one you T is for Take aContinue reading “Merry Christmas from me to you – A wee Christmas poem.”
Being on the receiving end…
For twenty years I have been a Social Worker retiring in May of this year. I have been accustomed to having some hard conversations with patients and their partner or other family members. I always knew it must be hard to hear that they needed to go into residential care, but I never fully putContinue reading “Being on the receiving end…”
What’s precious? – includes ‘Swedish death cleaning’!!
None of us can know what is precious to someone unless they tell us. I had an incident a couple of days ago, that illustrated that very well. I had a bit of a health scare – which turned out OK – and I spent the day in hospital having tests. One of the testsContinue reading “What’s precious? – includes ‘Swedish death cleaning’!!”
My journey with Parkinsons 