Support Groups

For quite some time now, I have been going to a support group for people with Parkinson’s and their partner/spouse/support person. The group is a very comfortable place for me, and I am sure for others to connect and get support if needed. Often, we meet and we might catch up with what has beenContinue reading “Support Groups”

Tell your story before it is lost…

Today, I picked up my 89 year old uncle and took him shopping. Just the two of us, with a small list each out and enjoying each other’s company. With my health issues of recent times and recovering from yet another operation, I have only recently begun driving again. Prior to my recommencing driving, myContinue reading “Tell your story before it is lost…”

Anyone happy to be interviewed for my new podcast?

Hi, this is especially for those of my followers who have been with me on my journey with this blog and we have shared a lot together. That doesn’t preclude any new people. I have very few followers at the moment on the podcast, but hoping if I can get some good interviews that willContinue reading “Anyone happy to be interviewed for my new podcast?”

“What’s yours is mine, what’s mine’s me own!”

This little phrase has been trotted out over the years in our family. We always had a bit of a laugh because it was tongue in cheek and a bit cheeky. However, I’ve just been sitting here at the end of the second week of retirement and it just popped into my head. Prior toContinue reading ““What’s yours is mine, what’s mine’s me own!””

To tell or not to tell… Why, Who, What, Not and Where… Or you could ask!

Big heading tonight! I am sure there are many differing opinions on the topic of telling those in our lives about our diagnosis. We all do what feels right for us and I acknowledge that what is right for me, is perhaps not right for everyone. Recognising that we as individuals have different thoughts andContinue reading “To tell or not to tell… Why, Who, What, Not and Where… Or you could ask!”

Living our own truth

I read with interest a post on the Facebook page that I follow from one of the administrators. The writer was commenting on the unique experiences of this condition that we all have. She had put a lot of thought into this post and went on to say that when posting she always writes about what worksContinue reading “Living our own truth”

Lost for words…

My words are important to me. I have always had a love of words. Of poetry. Of poets and for me I have also always loved William Shakespeare. I like many types of poetry, especially those that tell a story like Pam Ayres’ work. My particular favourite – which I always wanted to read toContinue reading “Lost for words…”

Being available and being mindful of boundaries

I started this Blog soon after I was diagnosed with Parkinson’s on 15/12/2020. It had been a difficult year with lockdown, a personal tragedy and then the diagnosis. I needed to process what was happening to me and also wanted to try to help others through sharing my experiences along the way. My thoughts andContinue reading “Being available and being mindful of boundaries”

What would I tell my newly diagnosed self…

I am a member of a Parkinson’s Facebook group and find it very helpful hearing from others with this condition. It is a very positive group and they have themes on it like ‘Talent Tuesday’ where you are encouraged to share a skill or talent you have. Other days have other themes, but always youContinue reading “What would I tell my newly diagnosed self…”