If you are in the early stages of Parkies and even those a few years down the track, there seems to be a lot of variation in when or if people have commenced any sort of medication. This podcast talks about my choice which was to medicate immediately on the advice of my very experiencedContinue reading “To medicate or not to medicate that is the question…”
Tag Archives: neurologist
Seeing your GP, Specialist or Physio/Allied Health
As we go down this road with Parkinson’s as the unwelcome hitchhiker that they are, we need to develop strategies to make the most of opportunities for help. One of the situations that it is important that we get right, is when we find ourselves in front of a medical professional or allied health. IContinue reading “Seeing your GP, Specialist or Physio/Allied Health”
Neurology check-up
Today I had the appointment I have been waiting for, for literally years. We finally got in to see my Neurologist. My husband and I were sure that we had not seen him since the day of my diagnosis. However, to our surprise he produced a letter to our GP outlining a meeting we hadContinue reading “Neurology check-up”
Fighting for my rights – being my own advocate!
I have mentioned recently that I have been trying to get an appointment with my Neurologist, with no effect thus far. I will have been diagnosed four years ago on 15/12/20 and at the time of diagnosis, I was told that I would see my Neurologist annually. However, I have not had an appointment withContinue reading “Fighting for my rights – being my own advocate!”
Off my game… does that mean?
So today I went to play bowls as I have been doing for a few months now. Tuesdays and Saturdays and it’s a great way to get exercise and socialise with others and have a good afternoon out. It is interesting to note that on Tuesday when I played I had two really good games.Continue reading “Off my game… does that mean?”
Be your own best advocate…
For years I worked as a Social Worker and I often had to advocate for my patients and their families in various circumstances. When people find themselves needing significant health support and hospitalisation, they can feel that they have very little choice. It has always been important in my eyes to advocate for the choicesContinue reading “Be your own best advocate…”
Finding the right help and information
I have a friend who has had some significant symptoms recently, with sharp pains in her head and at times she can’t get out of bed for days. She has been to her GP and is awaiting a scan to try to determine what is happening for her. She is waiting to see a NeurologistContinue reading “Finding the right help and information”
Learning from the ‘experts’ on Parkinson’s
This journey that we find ourselves on is one in which we are constantly learning. Constantly seeking the knowledge to understand this condition, what it means for each of us and for the people who are in supporting roles in our lives. When I say the word ‘expert’ many would find themselves thinking about those professionsContinue reading “Learning from the ‘experts’ on Parkinson’s”
A bit of a wobbly day…
As with all of us with Parkinson’s as part of our lives, things don’t always go smoothly. I know that I am a more emotional person these days and it can be a challenge coping with things from time to time. This week one of my work colleague’s mothers is dying and that has affectedContinue reading “A bit of a wobbly day…”
Things are going well
This week I had my twelve month review – albeit 3 months overdue – and I’m glad I did. In the back of my mind, I think I always wonder if I am doing OK. If I am missing signs of progression and being lulled into a false sense of security. So I had myContinue reading “Things are going well”
My journey with Parkinsons 