Be your own best advocate always…

As people with complex health conditions and also for those that support us, it can be easy to let the ‘professionals’ call the shots when it comes to decisions. They can be decisions large or small, but perhaps if we get into a cycle of always agreeing with these professionals without question, we may alsoContinue reading “Be your own best advocate always…”

Am I an anxious person? She asks anxiously….

Today I went to see the specialist Parkinson’s Nurse that works with my Neurologist. I had requested to see her, as I had been noticing a number of things that made me think that I have progressed – or is it regressed – with my Parkinson’s. We talked about swallowing problems, excess saliva and theContinue reading “Am I an anxious person? She asks anxiously….”

Off to tropical climate…

After three years of coping firstly with the pain of a severely compromised arthritic knee that subsequently had to be replaced, to be closely followed by a back injury that also required surgery, it is time to move forward. In moving forward, this means that I can actually start to trust in my body again,Continue reading “Off to tropical climate…”

Getting back to me…

A bit of a strange title today I guess. But, let me explain. For the past nearly three years now, I have not really been the me I want to be. Not the me that usually enjoys life and has a good sense of humour and hopefully is good to be around. The reason why?Continue reading “Getting back to me…”

Diagnosis – What did they tell you at the time?

This afternoon I was reading a post on a Facebook page for people with Parkinson’s and those who care about them. In that post they asked the question “what information did you receive from your doctor the day you were diagnosed with Parkinson’s disease?” That is a very good question to ask and I amContinue reading “Diagnosis – What did they tell you at the time?”

Voicing a problem…

In this blog, I have spoken about many aspects of my life with Parkinson’s and new things are cropping up all the time. Subtle changes in swallowing, maybe a memory that’s a bit worse and some other things so subtle it’s hard to put a finger on. I think I might notice a bit moreContinue reading “Voicing a problem…”

A busy day today… I saw an old lady…

I have had a very busy day today. It started with going to hospital for an appointment for a Coronary CT scan as I have been having sporadic visits to hospital due to significant chest pains. I have had ECG’s on several occasions and nothing seems to be showing as heart attack material at thisContinue reading “A busy day today… I saw an old lady…”

The times they are a changing

Yesterday, my husband and I took our three beautiful granddaughters out for lunch. The oldest (twins) have recently turned 16 and the youngest soon to turn 12. There have been some changes in their lives over the past few months and with NCEA and just living the life of a teenager, we haven’t seen thatContinue reading “The times they are a changing”

Sometimes being negative is a positive thing…

I was reading a post on a Facebook group that I follow and it has made me think. The person posting has obviously been struggling with this journey and expressing frustration perhaps because they have been reading all about how people are doing so well. People who say they are doing “PD Warrior” or otherContinue reading “Sometimes being negative is a positive thing…”

Diet for health or Diet for weight loss? – Podcast

Now that I am recovering well from my latest operation – my back – I feel that it is time to get myself moving and focussing on getting healthier. I have put on a lot of weight because basically I have not been able to do much of any sort of exercise because of kneeContinue reading “Diet for health or Diet for weight loss? – Podcast”