Trying not to focus on ‘the end game’

I saw this posted on a Facebook page this morning for people with Parkinson’s and those that support them. It felt raw and very sad for that person to post this note to his or her Parkinson’s community. As someone also with the diagnosis, I absolutely get what they are saying. How could I not?Continue reading “Trying not to focus on ‘the end game’”

Roles in a relationship

It occurs to me, that over time when you are in a good relationship that many things occur. You find that you balance each other out. What one is good at the other might not be and so you fill those gaps for each other. You slip into defined roles and those roles can becomeContinue reading “Roles in a relationship”

Looking after people I love

I have spoken before about a thing called ‘Acts of Service’ that a Counsellor once described to me. It is about saying ‘I love you’ with actions rather than words. I like to look after people that I love. My husband, my children, my grandchildren. It is my ‘I love you’ in physical form. MyContinue reading “Looking after people I love”

Creating memories to treasure

This gift of Parkinson’s – I know that sounds like a strange way to describe it – but it is a gift because it sharpens the senses, it makes me more aware of the gift of life, of family, of those I love. We would all like to think that we can live forever perhaps,Continue reading “Creating memories to treasure”

Working hard and creating a legacy for me…

I notice many changes in the way I view life these days. Since Parkies has moved into my life it – and it’s effects – are not far from my thoughts. A Psychologist I work with said recently that my life should not be all about Parkinson’s. But, in a way it shapes my veryContinue reading “Working hard and creating a legacy for me…”

Facing up to reality

Throughout this journey, I have tried to remain real and honest. That means for me that my Blog can sometimes be – if not negative – less positive than some of my posts. I have been in a room with other Parkies people and felt that my symptoms are minimal and under control by comparison.Continue reading “Facing up to reality”

Knowing (and accepting) when you need help!

I have always prided myself on my independence and have been loathe to accept help unless I really need it. In this latest chapter of my life journey, now more than ever I need to be more open to accepting help. As mentioned in my last post, I had a fall on 30/12 and injuredContinue reading “Knowing (and accepting) when you need help!”

Legally speaking

Let’s talk Enduring Power of Attorney! Many people do the ‘adult thing’ and get life insurance and do their Will for their wishes to be known when they are no longer here to voice them. But there is another scenario that comes up all the time in my work that people often don’t think of.Continue reading “Legally speaking”

Discussing the future

It is important to me, that I enjoy life here and now and don’t dwell on what might happen in the future too much. After all none of us have a crystal ball to predict what the future holds, with or without any kind of diagnosis. However, for me there was a conversation I feltContinue reading “Discussing the future”