When we were young

Some thoughts on when we were young and how the experiences we had have equipped us to challenge this condition and to not give in. Through learning to be independent and to think for ourselves, we know what we need in the way of support to succeed. Here is a link to a podcast aboutContinue reading “When we were young”

I can pick a Parkies – do I ask?

Yesterday was a good day. My first ever Tournament playing bowls. This was the culmination of two full day coaching sessions and an opportunity to put learning into practice. This was a big day for me and I was incredibly nervous. I had the nervous wees and other things! I’m not sure exactly why IContinue reading “I can pick a Parkies – do I ask?”

Health funding versus ACC New Zealand

This has long been a bone of contention with many of us here in New Zealand. The vast cavernous gulf between what you are entitled to if you have a health condition like Parkinson’s, Stroke, Dementia and many others. There is a stark comparison with those that have an accident – even if the negativeContinue reading “Health funding versus ACC New Zealand”

Am I an anxious person? She asks anxiously….

Today I went to see the specialist Parkinson’s Nurse that works with my Neurologist. I had requested to see her, as I had been noticing a number of things that made me think that I have progressed – or is it regressed – with my Parkinson’s. We talked about swallowing problems, excess saliva and theContinue reading “Am I an anxious person? She asks anxiously….”

Getting back to me…

A bit of a strange title today I guess. But, let me explain. For the past nearly three years now, I have not really been the me I want to be. Not the me that usually enjoys life and has a good sense of humour and hopefully is good to be around. The reason why?Continue reading “Getting back to me…”

The times they are a changing

Yesterday, my husband and I took our three beautiful granddaughters out for lunch. The oldest (twins) have recently turned 16 and the youngest soon to turn 12. There have been some changes in their lives over the past few months and with NCEA and just living the life of a teenager, we haven’t seen thatContinue reading “The times they are a changing”

Going through a bit of a rough patch with my health

It has been a busy couple of weeks for myself and my husband, starting with five days in Queenstown and then shortly after returning home, a visit from my oldest brother and his wife for four days. It was wonderful to see them both and to show them our ‘new’ home that they haven’t visitedContinue reading “Going through a bit of a rough patch with my health”

Having a bit of a day…

Currently, my husband and I are in Queenstown having a short break for a few days. Things have been going well and this has been a trip that we had postponed from October last year due to my back issues. I brought my walking stick with me and also my walking poles in case IContinue reading “Having a bit of a day…”

An interview – A daughter and professional view

It was my privilege to interview Kimberley who has a Mum with Parkinson’s. Kimberley resides in Australia and her Mum in Canada, so she is in regular contact with family there. It was interesting to hear her comparison’s in relation to supports that would be available under the different country’s health schemes. Kimberley’s role asContinue reading “An interview – A daughter and professional view”

Comorbidities Confuse Cause or cause confusion!

When you have a bunch of different health issues – ie. Comorbidities – it is sometimes difficult to know the cause of a new ache or pain and/or who to talk to about it! The risk of course is that we just shrug our shoulders and think it must be related to Parkinson’s when itContinue reading “Comorbidities Confuse Cause or cause confusion!”