When I open up to people about my Parkinson’s – which I often do early on – one of the first things they tend to say is that I don’t look like someone with Parkinson’s. They also say that they don’t notice any issues with standing, walking or tremors. All of the above is true.Continue reading “Forgetting….”
Category Archives: illness
Moving on – A village or facility when and why?
I am a planner from way back. I like to know what is happening and when and although I don’t necessarily feel I need to work to a strict schedule, I do like to know I am in control. That makes me sound a bit of a control freak, but it just means that IContinue reading “Moving on – A village or facility when and why?”
Have I been offensive?
I have been looking at a comment that has been made on my blog about the term ‘Parkies’ which is in the title of my Blog and appears from time to time in entries and in my podcasts. The comment was along the lines that ‘Parkies’ has been – and still may be for someContinue reading “Have I been offensive?”
Pride goes before a fall… What does that even mean?!?
The saying “Pride goes before a fall” is such a negative outlook on life as far as I am concerned. Giving it this sort of negative attention baffles me. How many times in my life have I felt pride? Pride for something I have done? Something my children have done or my husband? or anyContinue reading “Pride goes before a fall… What does that even mean?!?”
Have you seen/heard my podcasts?
You might be interested in some of my earlier podcasts on “My Journey with Parkinson’s” and my most recent venture which is interviewing people with Parkinson’s and their partners about what Parkinson’s means for them. I will add some links below, if you would like to have a look. Just a sampling of the contentContinue reading “Have you seen/heard my podcasts?”
“By eck, by gum would you Adam and Eve it!”
Pretty random huh! I have been thinking today about the difference our culture can make for us. Also, about the definition of culture. Often culture is seen as part of your ethnicity and that can be true. But, it is also about the experiences and influences that you grew up with and your family culture.Continue reading ““By eck, by gum would you Adam and Eve it!””
Parkinson’s is it hereditary and would I want to find out?
I was reading a post on a Facebook page that I follow for people affected by Parkinson’s and the writer questioned whether Parkinson’s was hereditary. Having had both my parents diagnosed with Parkinson’s, it seems that there must be an element of genetics involved. But, I am not a researcher or a scientist and IContinue reading “Parkinson’s is it hereditary and would I want to find out?”
When we were young
Some thoughts on when we were young and how the experiences we had have equipped us to challenge this condition and to not give in. Through learning to be independent and to think for ourselves, we know what we need in the way of support to succeed. Here is a link to a podcast aboutContinue reading “When we were young”
I can pick a Parkies – do I ask?
Yesterday was a good day. My first ever Tournament playing bowls. This was the culmination of two full day coaching sessions and an opportunity to put learning into practice. This was a big day for me and I was incredibly nervous. I had the nervous wees and other things! I’m not sure exactly why IContinue reading “I can pick a Parkies – do I ask?”
Health funding versus ACC New Zealand
This has long been a bone of contention with many of us here in New Zealand. The vast cavernous gulf between what you are entitled to if you have a health condition like Parkinson’s, Stroke, Dementia and many others. There is a stark comparison with those that have an accident – even if the negativeContinue reading “Health funding versus ACC New Zealand”
My journey with Parkinsons 