In this blog, I have spoken about many aspects of my life with Parkinson’s and new things are cropping up all the time. Subtle changes in swallowing, maybe a memory that’s a bit worse and some other things so subtle it’s hard to put a finger on. I think I might notice a bit moreContinue reading “Voicing a problem…”
Category Archives: Hard times
A busy day today… I saw an old lady…
I have had a very busy day today. It started with going to hospital for an appointment for a Coronary CT scan as I have been having sporadic visits to hospital due to significant chest pains. I have had ECG’s on several occasions and nothing seems to be showing as heart attack material at thisContinue reading “A busy day today… I saw an old lady…”
Sometimes being negative is a positive thing…
I was reading a post on a Facebook group that I follow and it has made me think. The person posting has obviously been struggling with this journey and expressing frustration perhaps because they have been reading all about how people are doing so well. People who say they are doing “PD Warrior” or otherContinue reading “Sometimes being negative is a positive thing…”
Having a bit of a day…
Currently, my husband and I are in Queenstown having a short break for a few days. Things have been going well and this has been a trip that we had postponed from October last year due to my back issues. I brought my walking stick with me and also my walking poles in case IContinue reading “Having a bit of a day…”
Hold onto hope … never say never!
In 2021 we moved into our new home together with this little lady and her sister Gidget. Unfortunately, at just two weeks in Milly got out and we have never seen her since. We did all the things you do, put notices in all the lost pets options online. Rang vets, walked for miles callingContinue reading “Hold onto hope … never say never!”
This might help you – I know it helped me!
I have done a couple of new podcasts over the last day or two and I always encourage new followers to go back to the beginning of my blog, especially if they are newly diagnosed. I know that I often go back and re-read some of my blog posts and I can definitely see aContinue reading “This might help you – I know it helped me!”
We are not ‘us’ at the moment
A bit of a sad, reflective post today. But that is what this podcast and my blog have been created for. Not just for the happy times, but also the bare reality of being a person with Parkinson’s and other health issues. It is also my acknowledgement, that it is not just me that isContinue reading “We are not ‘us’ at the moment”
When EPOA – Enduring Power of Attorney goes wrong – Podcast
I was fortunate to have the opportunity to interview Louise Taylor, a well respected lawyer and friend about what happens when EPOA goes wrong. She is great to listen to and has a very engaging style while giving essential information about this important subject. It’s well worth a listen.
Anyone happy to be interviewed for my new podcast?
Hi, this is especially for those of my followers who have been with me on my journey with this blog and we have shared a lot together. That doesn’t preclude any new people. I have very few followers at the moment on the podcast, but hoping if I can get some good interviews that willContinue reading “Anyone happy to be interviewed for my new podcast?”
A hidden issue – how can I be seen?
I’ve written before in this blog about hidden disabilities and how challenging it can be to not only live with them, but for others to understand. I often use the analogy of a person in a wheelchair at the bottom of some steps. No reasonable person would expect them to be able to get upContinue reading “A hidden issue – how can I be seen?”
My journey with Parkinsons 