Today’s post is not a happy post, it is a somber post about “Life, Love and Loss”. Today is the day we think about my oldest son Adam, who left us suddenly, but hopefully peacefully on 04/10/2020. He passed away in his sleep from an undiagnosed heart condition. At least we think it was undiagnosed.Continue reading “Life, love and loss…”
Category Archives: Hard times
When we were young
Some thoughts on when we were young and how the experiences we had have equipped us to challenge this condition and to not give in. Through learning to be independent and to think for ourselves, we know what we need in the way of support to succeed. Here is a link to a podcast aboutContinue reading “When we were young”
A poem – not about Parkies!
Every now and again I will write a poem and share it on my blog and podcast. They are most often about things other than Parkies, because my life has a whole lot of other complexities as well. This is about my main health issue that bothers me the most at present. Arthritis is aContinue reading “A poem – not about Parkies!”
Beware of disablers…
Working as a Social Worker for many years, there is of course terminology present and this can change over the years as thinking and research change. The world in which my parents brought us up was certainly a very different place. Words describing those of other cultures while a product of the times, would –Continue reading “Beware of disablers…”
Health funding versus ACC New Zealand
This has long been a bone of contention with many of us here in New Zealand. The vast cavernous gulf between what you are entitled to if you have a health condition like Parkinson’s, Stroke, Dementia and many others. There is a stark comparison with those that have an accident – even if the negativeContinue reading “Health funding versus ACC New Zealand”
We are vulnerable, the cared for and the carer
For those of you who are new to my blog, I am a 64 year old woman and am married to my third husband. My first marriage gave me three beautiful children and ultimately six beautiful grandchildren. My second – though it started off well – descended into a relationship of abuse and control. AContinue reading “We are vulnerable, the cared for and the carer”
Don’t stay with a bad partner
I wrote this poem a few days ago. I have been supporting someone who has left an abusive relationship and it made me think of my own second marriage which was abusive. For those of us with Parkinson’s, we are vulnerable enough under normal circumstances, but certainly being with someone who is abusive, whether itContinue reading “Don’t stay with a bad partner”
Voicing a problem…
In this blog, I have spoken about many aspects of my life with Parkinson’s and new things are cropping up all the time. Subtle changes in swallowing, maybe a memory that’s a bit worse and some other things so subtle it’s hard to put a finger on. I think I might notice a bit moreContinue reading “Voicing a problem…”
A busy day today… I saw an old lady…
I have had a very busy day today. It started with going to hospital for an appointment for a Coronary CT scan as I have been having sporadic visits to hospital due to significant chest pains. I have had ECG’s on several occasions and nothing seems to be showing as heart attack material at thisContinue reading “A busy day today… I saw an old lady…”
Sometimes being negative is a positive thing…
I was reading a post on a Facebook group that I follow and it has made me think. The person posting has obviously been struggling with this journey and expressing frustration perhaps because they have been reading all about how people are doing so well. People who say they are doing “PD Warrior” or otherContinue reading “Sometimes being negative is a positive thing…”
My journey with Parkinsons 