A fellow Trust member and I met at a local community radio station yesterday to record a segment for the Trust we belong to. After the recording was finished, we had a bit of a chat with the interviewer about a person she knows who has just been diagnosed with Alzheimers. It seems that hisContinue reading “Competence and Confidence”
Author Archives: kiwipommysue
Parkies promotes poetry…
I was reading a post on the Parkies FB page that I follow and to my surprise the following statement was made: “It is a well known fact that Parkinson’s brings out the creativity in PWP’s. It is one of the few gifts that we get from this unwelcome guest. For those who haven’t triedContinue reading “Parkies promotes poetry…”
Safety and Security
I was reading a post on the Parkinson’s Facebook page that I follow, and it had some thoughts that are worth sharing. The post was relaying an incident that happened to an elderly person in their neighbourhood that had a fall and activated their medical alarm. This was unrelated to Parkinson’s by the way. TheContinue reading “Safety and Security”
Sometimes I’d rather limp…
Let me just say, that at this stage my Parkinson’s is very manageable and I am lucky in that regard. My medications work well – even though I often take them late – and I don’t seem to have any real issues with mobilising. The thing is this. I have an injured knee at present.Continue reading “Sometimes I’d rather limp…”
The importance of Social Support systems…. and identity
I was reading a Blog from another person with Parkinson’s ‘A soft voice in a noisy world’ and he made this comment, which resonates with me. “If you choose to isolate yourself and avoid the camaraderie of others, you are missing a vital component of your support team.” This is so true and I oftenContinue reading “The importance of Social Support systems…. and identity”
Where do you go for help?
I was reading a few posts on a Facebook Page I am a member of for people with Parkinson’s. The person concerned was asking for someone who could act as an advocate for them to try to navigate their way through funding information. They also wanted to know about requirements for supports for at homeContinue reading “Where do you go for help?”
Be proud of yourself
Flicking through Facebook Reels and I found this clip. This kid is amazing and I totally agree with what he says. This spoke to me and I wanted to share it with you all. All too often in this journey we might be tempted to focus on the things that are too hard. The thingsContinue reading “Be proud of yourself”
The words in my head
My words come to me My words come to me, at times they’re unbidden From the depths of my brain, where they’ve been hidden I can be busy at work or driving my car They come to me often, wherever we are The words that I write can move me to tears As I tryContinue reading “The words in my head”
Parkies, Positivity and Purpose…
I was out with my husband today having a coffee in a local cafe. We were talking about a new project that I am working on. He turned to me and said, ‘You know, since you’ve been diagnosed with Parkinson’s you seem to have more positivity and purpose in life.’ I had to agree heContinue reading “Parkies, Positivity and Purpose…”
The gift of poetry
I suppose everyone has some kind of talent within them, even if we don’t always recognise it. My Mum was, I think, a very talented artist and I have quite a few of her paintings on my walls. I’m afraid that particular talent has definitely skipped this generation. At least it definitely seems to haveContinue reading “The gift of poetry”
