As we go down this road with Parkinson’s as the unwelcome hitchhiker that they are, we need to develop strategies to make the most of opportunities for help. One of the situations that it is important that we get right, is when we find ourselves in front of a medical professional or allied health. IContinue reading “Seeing your GP, Specialist or Physio/Allied Health”
Tag Archives: specialist
Neurology check-up
Today I had the appointment I have been waiting for, for literally years. We finally got in to see my Neurologist. My husband and I were sure that we had not seen him since the day of my diagnosis. However, to our surprise he produced a letter to our GP outlining a meeting we hadContinue reading “Neurology check-up”
A word with my GP
As a follow-up from a previous post about my lack of contact with my Neurologist, I thought I would make a comment and update where I am now. So, my husband and I went to the Doctor yesterday, so I could talk to him about a number of things which may be Parkies related andContinue reading “A word with my GP”
Fighting for my rights – being my own advocate!
I have mentioned recently that I have been trying to get an appointment with my Neurologist, with no effect thus far. I will have been diagnosed four years ago on 15/12/20 and at the time of diagnosis, I was told that I would see my Neurologist annually. However, I have not had an appointment withContinue reading “Fighting for my rights – being my own advocate!”
Off my game… does that mean?
So today I went to play bowls as I have been doing for a few months now. Tuesdays and Saturdays and it’s a great way to get exercise and socialise with others and have a good afternoon out. It is interesting to note that on Tuesday when I played I had two really good games.Continue reading “Off my game… does that mean?”
Be your own best advocate…
For years I worked as a Social Worker and I often had to advocate for my patients and their families in various circumstances. When people find themselves needing significant health support and hospitalisation, they can feel that they have very little choice. It has always been important in my eyes to advocate for the choicesContinue reading “Be your own best advocate…”
Learning from the ‘experts’ on Parkinson’s
This journey that we find ourselves on is one in which we are constantly learning. Constantly seeking the knowledge to understand this condition, what it means for each of us and for the people who are in supporting roles in our lives. When I say the word ‘expert’ many would find themselves thinking about those professionsContinue reading “Learning from the ‘experts’ on Parkinson’s”
Parkinson’s fear and shame…
I have started listening to a Podcast today titled “Fear and Shame in Parkinson’s”. They had a panel of people with Parkinson’s talking about the topic and what it means to them. I have to say, it is very easy to see the fear part of the Podcast topic. Let’s face it, if you focusContinue reading “Parkinson’s fear and shame…”
Not so Perkie…
I follow a Blog called ‘The Perkie Parkie’ who is usually a regular writer of her Blog. However, the Blog I read today talked about how she had taken some time off writing it as she was going through some tough stuff at the moment and she couldn’t face writing the Blog for a while.Continue reading “Not so Perkie…”
Things are going well
This week I had my twelve month review – albeit 3 months overdue – and I’m glad I did. In the back of my mind, I think I always wonder if I am doing OK. If I am missing signs of progression and being lulled into a false sense of security. So I had myContinue reading “Things are going well”
My journey with Parkinsons 