When I open up to people about my Parkinson’s – which I often do early on – one of the first things they tend to say is that I don’t look like someone with Parkinson’s. They also say that they don’t notice any issues with standing, walking or tremors. All of the above is true.Continue reading “Forgetting….”
Tag Archives: parkinsons-disease
Priorities – What do you focus on?
Yesterday a short video clip showed up on a Facebook Page for people with Parkinson’s and those that support them. It was a video of a husband whose wife had been diagnosed some 20 years ago and how he had spent those 20 years. He talked about how he had spent a significant amount ofContinue reading “Priorities – What do you focus on?”
Is lefty doing their job?
This thing that afflicts us, this Parkinson’s in all its forms is as individual as we are all individuals. We all experience some similarities, but the variation between people with the same condition can be vast. One thing that is quite intriguing is the way that Parkinson’s usually starts out on only one side ofContinue reading “Is lefty doing their job?”
Support Groups
For quite some time now, I have been going to a support group for people with Parkinson’s and their partner/spouse/support person. The group is a very comfortable place for me, and I am sure for others to connect and get support if needed. Often, we meet and we might catch up with what has beenContinue reading “Support Groups”
Know me not for Parkinson’s
I have just been chilling out in my spa pool, soaking away my various aches and pains, of which there are many! While I was there, I was listening to some music and Linda Ronstadt started to sing. As I listened to her music, I thought about the first time I heard her voice whenContinue reading “Know me not for Parkinson’s”
It’s not just “Shake and Shuffle”
I was out today with my cousin and my 89-year-old uncle. Periodically we like to go trawl around the Op Shops together. Today was a beautiful day and we were enjoying each other’s company. After visiting the first shop we decided it was time for a coffee and a comfort stop. We went to theirContinue reading “It’s not just “Shake and Shuffle””
We are all unique
This morning I was reading some posts on a Facebook page that I followed before we went to Rarotonga. It was a useful forum to find out about restaurants, tours, things to do and places to see. The posts this morning that most caught my eye were from a person who put an anonymous postContinue reading “We are all unique”
Diagnosis – What did they tell you at the time?
This afternoon I was reading a post on a Facebook page for people with Parkinson’s and those who care about them. In that post they asked the question “what information did you receive from your doctor the day you were diagnosed with Parkinson’s disease?” That is a very good question to ask and I amContinue reading “Diagnosis – What did they tell you at the time?”
Please and Thank you and assumptions
Like most people born in the 50’s, 60’s and perhaps the 70’s, manners were drummed into me from the earliest age. We were taught to respect our elders and those in authority and always, always, say please and thank you. If I stayed at someone’s house, I was to say, “Thank you for having me!”Continue reading “Please and Thank you and assumptions”
The times they are a changing
Yesterday, my husband and I took our three beautiful granddaughters out for lunch. The oldest (twins) have recently turned 16 and the youngest soon to turn 12. There have been some changes in their lives over the past few months and with NCEA and just living the life of a teenager, we haven’t seen thatContinue reading “The times they are a changing”
My journey with Parkinsons 