Anniversaries are always hard

Today is an anniversary for me and for my family. Two years ago today we lost my son Adam aged just 38 years of age. He had an undiagnosed heart condition and passed in his sleep. It was a huge shock to us all. Today we think of him and the many memories we shareContinue reading “Anniversaries are always hard”

It’s not all about me…

Strange to say, but ‘It’s not all about me’ this Blog is a part of the story of my life in my journey with Parkinson’s, but it is also about my family. With the weekend coming up, I had made plans to have my three grand-daughters to stay for the weekend. They are 13 yearContinue reading “It’s not all about me…”

Leaving a legacy…

In many ways, I find that many of my attitudes in life have changed significantly since my diagnosis. It is important to me to be able to create memories and provide my grand-children with experiences that they can learn from and enjoy. I have spoken before about Parkinson’s making me more focussed on spending timeContinue reading “Leaving a legacy…”

‘Partners in Parkinson’s’… and ‘Family Systems Theory’

Tonight I have been looking around at other Blogs about Parkinson’s and amongst them found some Podcasts titled ‘When life gives you Parkinson’s’. I listened to one on the subject of Carers or Caregivers and how the person with Parkinson’s and their wife feel about the label of ‘Carer’. I found myself reflecting on thisContinue reading “‘Partners in Parkinson’s’… and ‘Family Systems Theory’”

Perfect imperfection…

I have always said that perfection is over-rated. That if we always strive for perfection, we are bound to be disappointed. It always surprises me when my boss describes me as a ‘perfectionist’ for I feel that it is a description that doesn’t sit well for me. I acknowledge I try to do my best,Continue reading “Perfect imperfection…”

How do I ‘do life’ and not focus on Parkinson’s?

I try my best to be positive and to do as many things as I can to give me the best chance of a good life as someone with Parkinson’s. A Psychologist I work with once said to me that I shouldn’t make my life all about Parkinson’s. Easy for her to say, but difficultContinue reading “How do I ‘do life’ and not focus on Parkinson’s?”

Milestones and Memories…

So, here it is Monday evening recovering from a busy weekend with my family in Wellington. I say ‘recovering’ because we had such a busy time, I was exhausted at work today. However, I wouldn’t change it for the world. I have a son and a daughter who have blessed me with three grandchildren each.Continue reading “Milestones and Memories…”

If only we had a crystal ball…

Life would be so much easier perhaps if we knew what to expect, but none of us has a crystal ball to be able to see what our future holds. Perhaps that is for the best. Today, I had a discussion with someone I have worked with for a few years now and who isContinue reading “If only we had a crystal ball…”

Sharing time with family

Today I spent the day with my three grand-daughters and my cousin out Op Shopping. My daughter is raising her children to be independent thinkers who are not slaves to current fashions, but seek their own style. She told me that they enjoyed Op Shopping, so I thought I would take them out and seeContinue reading “Sharing time with family”

The importance of connecting…

For my children…. I love you with all my heart I have spoken before in this Blog about how important family is to me. More so now since I was diagnosed with this condition I have christened Parkies. Time spent with my adult children and their children is incredibly important to me now. This weekendContinue reading “The importance of connecting…”