“Does it feel unreal sometimes?”

One bonus of the changes that have happened in my life since diagnosis is that I have grown closer to my cousin who also lives in Christchurch. Previously, we lived a reasonable distance away from each other and both living busy lives we caught up when we could.

With our decision to move to North Canterbury, we now live literally five minutes away from each other. She has become more than just a cousin, she has become a valuable friend and someone who I value spending time with. As we spend more time together, it becomes more apparent to me, that sharing the same family ties and genetics means we understand each other perhaps more than any ‘outsider’ might do.

We talked about friendships – while we sat in my spa pool together (she has become my spa buddy!) – and it seems that we are more alike than I would have thought. We both have people we enjoy time with at work, but don’t have a great circle of friends. Nor, do we really need to! We both have partners/husband that we are very happy with and people at work we connect with and that, it seems, is enough for both of us. We have busy lives and trying to be too social with other people is sometimes too hard!

One thing I appreciate since having my spa pool, is that it gives the opportunity to spend time together without devices, or screens, or other interference. We talk about all manner of things while we chill out in the warm waters. Yesterday, she asked the question “Does it sometimes feel unreal that you have Parkinson’s?” There are not many people who would ask me that question and I appreciated that she did. My answer was that ‘Yes, it does feel unreal sometimes!’ The thing is, with being in the early stages, with my symptoms well under control, I can sometimes almost forget that I have this diagnosis. I get on with living my life, working, pottering round at home and spending time with my family. Then, I have a twitch and a tremor and I remember that it is real.

As we talked, I said that I am pretty rubbish at doing my voice exercises. To which she commented, “You’re still pretty good at talking (cheekily) so I see no problem there!” It is refreshing that she can kid me about these things, that we can be honest with each other. She has become one of the most important people in my life and I know when Parkies becomes more apparent and problematic that she will be there to support me and my husband.

We have a shared history which gives us a bond that no friend could replicate. Her parents too are part of my support crew – even in their 80’s – and always check in and come visit and we all ensure we stay connected.

When Parkinson’s becomes something that I can no longer ignore and put to the back of my mind, it is good to know that I have support from my family and that I can count on them to be there for me when I need them.

Published by kiwipommysue

I work in health and have been with the same supportive team for over 7 years. They are all aware of my diagnosis and this helps tremendously especially while I get used to the idea of my diagnosis. My parents both had Parkinsons, so I guess my odds were higher than most.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

%d bloggers like this: