Big heading tonight! I am sure there are many differing opinions on the topic of telling those in our lives about our diagnosis. We all do what feels right for us and I acknowledge that what is right for me, is perhaps not right for everyone. Recognising that we as individuals have different thoughts andContinue reading “To tell or not to tell… Why, Who, What, Not and Where… Or you could ask!”
Category Archives: Symptoms
Pondering Parkies with my Peers!
Tonight we had our regular group of Parkies People. I was pleasantly surprised at how many people turned up tonight. Heartening too to see the majority of the participants tonight had their spouse/partner with them. My husband was also able to come tonight as luckily he wasn’t working. I was a bit mean I suppose,Continue reading “Pondering Parkies with my Peers!”
For my friends… I know it was hard for you to say!
My friends had the difficult job of telling me some honest truths about my symptoms, which unfortunately I didn’t realise had become noticeable… So, I wrote them a poem. I cruise through life so slowly and try to do my bestI’m grateful for my family, for I am truly blessedAlthough I do have Parkies, IContinue reading “For my friends… I know it was hard for you to say!”
Be careful what you ask for…
One thing that I know, is it can be when someone is asked a question about their driving – ‘I’m a good driver’ – or how much they drink ‘just a glass of wine each night’ – or ‘I don’t need to write things down, I’ll remember’ their truth may not be ‘the truth’ asContinue reading “Be careful what you ask for…”
Getting out and about…
I have had a lot of time at home by myself while recovering from my operation. Especially in the beginning, when I could not get into a car to go anywhere, that was a bit of an issue. Luckily, I can now not only get in and out of a car but also drive. IContinue reading “Getting out and about…”
Terrible typo…
I was just re-reading my previous post about my checkup with the surgeon who operated on my knee. For some reason, I had put that I was recovering from ‘a significant car accident’. No idea where that came from, but it illustrates that I must be very careful in proof reading before I publish inContinue reading “Terrible typo…”
All systems go…
Today was my final check-in with my surgeon who operated on my troublesome knee. He was very pleased with the outcome of my surgery so far and encouraged me to keep exercising and making my body work and walk better after a significant surgery. I had some questions about some pains I have been havingContinue reading “All systems go…”
Feeling a bit Parkies today
It is unusual for me to notice some fluctuations in symptoms. However, today for the first time I can recall I feel quite Parkies today. We are currently in Akaroa, staying in a Motel for the night. I got up about 5am because I couldn’t get back to sleep. I also took my medication notContinue reading “Feeling a bit Parkies today”
Finding the right help and information
I have a friend who has had some significant symptoms recently, with sharp pains in her head and at times she can’t get out of bed for days. She has been to her GP and is awaiting a scan to try to determine what is happening for her. She is waiting to see a NeurologistContinue reading “Finding the right help and information”
A wee bit OCD perhaps – being ‘particular’ about things?
As I have gone through life, I have become more and more a creature of habit. Certain things need to be done a certain way, or it is just not right and it is positively jarring. One of the things that I find I can’t abide is the way a toilet roll is put on theContinue reading “A wee bit OCD perhaps – being ‘particular’ about things?”
My journey with Parkinsons 