Even the most caring of people – who want to protect us – don’t always get it right. Neither do we. However, with a condition which will one day potentially take so much away from us, we need to be trusted to decide what is safe or not to do. This may take some negotiationContinue reading “Don’t wrap me in cotton wool…”
Category Archives: Self learning and growth
Boom and Bust…
Over the past 20+ years I have been with my husband, I have had many operations. Finger joint replacements – yes, that is possible – I didn’t know you could until I was offered it. This was because of my arthritis. Four fingers in total. A shoulder operation for a frozen shoulder. Full knee replacementContinue reading “Boom and Bust…”
To medicate or not to medicate that is the question…
If you are in the early stages of Parkies and even those a few years down the track, there seems to be a lot of variation in when or if people have commenced any sort of medication. This podcast talks about my choice which was to medicate immediately on the advice of my very experiencedContinue reading “To medicate or not to medicate that is the question…”
Let’s talk about memory, dementia and ski holidays
Memory takes many forms, from the mundane to the crucial – like remembering your meds – to those with an emotional overlay. My podcast is about that and so much more. I hope you will all soon be planning your ‘ski’ holidays…
Seeing your GP, Specialist or Physio/Allied Health
As we go down this road with Parkinson’s as the unwelcome hitchhiker that they are, we need to develop strategies to make the most of opportunities for help. One of the situations that it is important that we get right, is when we find ourselves in front of a medical professional or allied health. IContinue reading “Seeing your GP, Specialist or Physio/Allied Health”
Linda – MS & Parkinson’s… An interview
Today I interviewed Linda from MS & Parkinson’s Canterbury, New Zealand. She outlined her role within the service and also spoke about the many ways the organisation can support people in the community with MS and Parkinson’s. The link below will take you to the interview and I hope that you enjoy it. If youContinue reading “Linda – MS & Parkinson’s… An interview”
When is old, old?
I did a podcast yesterday about aging. As in the title, ‘When is old, old?’ The number you have reached chronologically does not necessary reflect your abilities and does not necessarily preclude you from certain activities. As in the case of my selling my e-bike recently at just shy of 64, this was a personalContinue reading “When is old, old?”
Farewell to my lovely red e-bike…
I have written before about my lovely red e-bike that I bought and have treasured. Unfortunately, with my knee operation and now my back operation, the planets just don’t seem to have been aligned for me to be able to ride it. One of my main priorities post my back operation was to get backContinue reading “Farewell to my lovely red e-bike…”
We can pat ourselves on the back
Below is a link to a podcast about patting ourselves on our back. Celebrating when we achieve something, in this world of ours that can become dominated by Parkinson’s. With a compromised brain, that might take longer to learn and retain information. I have just spent most of the day trying to learn how toContinue reading “We can pat ourselves on the back”
Podcast interviews anyone keen?
So, for those of you who are new to my efforts and for those of you who are not, I am reaching out to see if anyone can assist me with my podcast. One of the reasons I decided to add a podcast on to my blog, is that I wanted the ability to interviewContinue reading “Podcast interviews anyone keen?”
My journey with Parkinsons 