I am now entering my fourth year of living with Parkinson’s. I am fortunate to have a very supportive husband and family and that I remain reasonably independent and continue to work. There are some unmet needs though, that need expression.At some point we are likely to have to face the fact that I cannot continue toContinue reading “New diagnosis for younger people with Parkies”
Category Archives: self-care
What is the smart option for you?
Tonight I attended the first monthly support group for 2024. We are a bunch of early stage people with Parkinson’s and all under 65. Partners are welcome too and it is nice to see them tapping into the group as a support. We talk about many things at this group and while it is a relaxed typeContinue reading “What is the smart option for you?”
My needy knee…
It is now just on six weeks since I had my knee replacement surgery on 29/11/23. I am told that I am doing well by my husband, my surgeon and my physiotherapist. However, for me – as ever impatient to get on – it feels like slow process and that it is taking forever. This experience has certainlyContinue reading “My needy knee…”
To all you ‘carers’ out there…
Before I get into this post, let me say that I have a degree of reluctance to label those that support us as ‘carers’. To me, this takes away from the person’s identity as a husband, wife, partner or other family member who cares about us, but not necessarily identifies with the role of ‘carer’. IContinue reading “To all you ‘carers’ out there…”
Choices
Reading a post from the Parkinson’s Facebook page that I follow, there was a quote from my hero in Parkinson’s, Michael J Fox. It goes as follows: I often say now I don’t have any choice whether or not I have Parkinson’s, but surrounding that non-choice is a million other choices that I can make.Continue reading “Choices”
Carers views vs PWP
This journey of ours that we travel on with Parkinson’s is a challenging one. There is no denying that. If we have family who support us or partners that live with us, it is a joint experience and each affects the other as we learn what Parkinson’s means for us all. I was reading a post inContinue reading “Carers views vs PWP”
Happy 3rd Anniversary…
I have just realised today that I missed two Anniversary’s this month. The first of which is the Anniversary of my diagnosis of Parkinson’s on 15/12/20. The second a happier Anniversary on 21/12/20 when we moved into our beautiful home in Kaiapoi. As I write this I am at home and in recovery mode from my kneeContinue reading “Happy 3rd Anniversary…”
Learning from the ‘experts’ on Parkinson’s
This journey that we find ourselves on is one in which we are constantly learning. Constantly seeking the knowledge to understand this condition, what it means for each of us and for the people who are in supporting roles in our lives. When I say the word ‘expert’ many would find themselves thinking about those professionsContinue reading “Learning from the ‘experts’ on Parkinson’s”
I have a confession to make…
It has been some time since I have really been able to do my Parkinson’s exercises due to my knee issues. Many of the exercises were such that my knee definitely hampered and/or prevented me being able to do them. That is my excuse for that side of my addressing my Parkinson’s through exercise. I have recentlyContinue reading “I have a confession to make…”
Have I become invisible?
There is nothing quite like experiencing something for yourself first-hand to open your eyes to the challenges of having a disability. Post operatively I am doing well and currently mobilising with two crutches. I will admit that my mobilising is slow, but that’s just the way it is for a while till my recovery continues. Yesterday,Continue reading “Have I become invisible?”
My journey with Parkinsons 