How does anyone ‘do life’ if there is an almost total lack of certainty? Add to that a healthy dose of pain and – it seems – as I said to someone this morning ‘every pain medication known to mankind’ life feels a bit tough at the moment. That’s the understatement of the year, that’sContinue reading “A world of pain and uncertainty”
Category Archives: self-care
There are no experts in Parkinson’s – Oh, yes there are!
Let’s start this post with a little exercise. Go and look in the nearest mirror and what do you see? Do you see your tired eyes or your hair that needs cutting because you haven’t had time. Do you see all that you see as defects and that is maybe all you are accustomed toContinue reading “There are no experts in Parkinson’s – Oh, yes there are!”
Discussing the future – Podcast
The is an important topic and one which is never going to be easy. However, the way I wanted to handle it was to initiate the discussion early so that I could fully participate. My husband was reluctant to discuss at first as he felt it was far too early to do so. I originallyContinue reading “Discussing the future – Podcast”
Culling my friend list… Why?
I wrote recently about the importance of having a support network, of having friends and family that I could rely on. Also, the importance of finding people who we could rely on in times of need. Over the last few days, I have been thinking more about this topic. Sometimes I don’t know why theseContinue reading “Culling my friend list… Why?”
The bucket of joy – not a bucket list – Podcast
Many people seem to come up with a ‘bucket list’ if given news that they have a terminal illness. The list comprises things they want to do before it is too late to do them. To me that is quite a negative thing to do, so I thought I would turn it on it’s head.Continue reading “The bucket of joy – not a bucket list – Podcast”
Friends to Family, Family to Friends
When I was growing up, there were people in our lives who we called Auntie or Uncle and we always thought of them as that. Several years passed before I remember having a conversation with my Mum and I asked whose side of the family this Auntie and Uncle came from. Mum then told meContinue reading “Friends to Family, Family to Friends”
The weird things you need to know about me…. Podcast
This is an opportunity for those that know me and also of course for those who don’t, to know some of the weird things about me. My children have for many years told me that I was weird and you are likely to have the same opinion when you listen to this. It was aContinue reading “The weird things you need to know about me…. Podcast”
I pity those who support me – Podcast
This podcast is about the challenges of supporting someone with Parkinson’s. For the person with Parkinson’s themselves to know what they need is difficult enough, but being able to convey that to others can be a real challenge. On the one hand, we want to maintain independence, on the other hand we may get upsetContinue reading “I pity those who support me – Podcast”
Which is caused by my back and what is my Parkinson’s?
Although I have retired as of 9/5/2024, I still feel that my Parkinson’s at this stage is not obvious to many around me. I’m not sure sometimes whether that is a good thing or a bad thing. It’s a good thing I think in many ways, because I don’t want the world at large toContinue reading “Which is caused by my back and what is my Parkinson’s?”
Pods and Blogs and odds and sods…
As the title might suggest, this is a blog post about many things. Firstly, Podcasts or ‘Pods’ for short. I am enjoying doing the podcasts more than I thought I would. I did my first interview via ZOOM yesterday and posted it on here this morning. Call me biased, but I think they came outContinue reading “Pods and Blogs and odds and sods…”
My journey with Parkinsons 