Today I interviewed Linda from MS & Parkinson’s Canterbury, New Zealand. She outlined her role within the service and also spoke about the many ways the organisation can support people in the community with MS and Parkinson’s. The link below will take you to the interview and I hope that you enjoy it. If youContinue reading “Linda – MS & Parkinson’s… An interview”
Category Archives: self-care
When is old, old?
I did a podcast yesterday about aging. As in the title, ‘When is old, old?’ The number you have reached chronologically does not necessary reflect your abilities and does not necessarily preclude you from certain activities. As in the case of my selling my e-bike recently at just shy of 64, this was a personalContinue reading “When is old, old?”
Farewell to my lovely red e-bike…
I have written before about my lovely red e-bike that I bought and have treasured. Unfortunately, with my knee operation and now my back operation, the planets just don’t seem to have been aligned for me to be able to ride it. One of my main priorities post my back operation was to get backContinue reading “Farewell to my lovely red e-bike…”
We can pat ourselves on the back
Below is a link to a podcast about patting ourselves on our back. Celebrating when we achieve something, in this world of ours that can become dominated by Parkinson’s. With a compromised brain, that might take longer to learn and retain information. I have just spent most of the day trying to learn how toContinue reading “We can pat ourselves on the back”
Podcast interviews anyone keen?
So, for those of you who are new to my efforts and for those of you who are not, I am reaching out to see if anyone can assist me with my podcast. One of the reasons I decided to add a podcast on to my blog, is that I wanted the ability to interviewContinue reading “Podcast interviews anyone keen?”
This might help you – I know it helped me!
I have done a couple of new podcasts over the last day or two and I always encourage new followers to go back to the beginning of my blog, especially if they are newly diagnosed. I know that I often go back and re-read some of my blog posts and I can definitely see aContinue reading “This might help you – I know it helped me!”
Some future proofing thoughts
Thinking back to when I first had the first discussion with my husband and moving from a two storey house that we loved to a single storey home. He had at the time thought that it was too early to move, as I was very much in the early stages of my diagnosis. However, itContinue reading “Some future proofing thoughts”
We are not ‘us’ at the moment
A bit of a sad, reflective post today. But that is what this podcast and my blog have been created for. Not just for the happy times, but also the bare reality of being a person with Parkinson’s and other health issues. It is also my acknowledgement, that it is not just me that isContinue reading “We are not ‘us’ at the moment”
Accepting our limits as we age…
On the surface of it, this could sound less than positive, or perhaps that I am giving up. Far from it, I have been awaiting back surgery and finally had it on 3/2/25. It is early days yet of course, but I have been reviewing my goals for my recovery. Prior to going to surgeryContinue reading “Accepting our limits as we age…”
Just a little prick…
This post is the first of a few that I have rattling round in my head from being in hospital. It is about the minimalization that some health practitioners can be guilty of and includes some funny moments I have experienced as a result. I am very limited with the time I can spend sittingContinue reading “Just a little prick…”
My journey with Parkinsons 